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Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods

Longitudinal, natural experiments provide an ideal evaluation approach to better understand the impact of built environment interventions on community health outcomes, particularly health disparities. As there are many participant engagement challenges inherent in the design of large-scale community...

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Autores principales: Ferris, Emily B, Wyka, Katarzyna, Evenson, Kelly R, Dorn, Joan M, Thorpe, Lorna, Catellier, Diane, Huang, Terry T-K
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8294636/
https://www.ncbi.nlm.nih.gov/pubmed/33759799
http://dx.doi.org/10.2196/18591
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author Ferris, Emily B
Wyka, Katarzyna
Evenson, Kelly R
Dorn, Joan M
Thorpe, Lorna
Catellier, Diane
Huang, Terry T-K
author_facet Ferris, Emily B
Wyka, Katarzyna
Evenson, Kelly R
Dorn, Joan M
Thorpe, Lorna
Catellier, Diane
Huang, Terry T-K
author_sort Ferris, Emily B
collection PubMed
description Longitudinal, natural experiments provide an ideal evaluation approach to better understand the impact of built environment interventions on community health outcomes, particularly health disparities. As there are many participant engagement challenges inherent in the design of large-scale community-based studies, adaptive and iterative participant engagement strategies are critical. This paper shares practical lessons learned from the Physical Activity and Redesigned Community Spaces (PARCS) study, which is an evaluation of the impact of a citywide park renovation initiative on physical activity, psychosocial health, and community well-being. The PARCS study, although ongoing, has developed several approaches to improve participant engagement: building trust with communities, adapting the study protocol to meet participants’ needs and to reflect their capacity for participation, operational flexibility, and developing tracking systems. These strategies may help researchers anticipate and respond to participant engagement challenges in community-based studies, particularly in low-income communities of color.
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spelling pubmed-82946362021-08-03 Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods Ferris, Emily B Wyka, Katarzyna Evenson, Kelly R Dorn, Joan M Thorpe, Lorna Catellier, Diane Huang, Terry T-K JMIR Form Res Viewpoint Longitudinal, natural experiments provide an ideal evaluation approach to better understand the impact of built environment interventions on community health outcomes, particularly health disparities. As there are many participant engagement challenges inherent in the design of large-scale community-based studies, adaptive and iterative participant engagement strategies are critical. This paper shares practical lessons learned from the Physical Activity and Redesigned Community Spaces (PARCS) study, which is an evaluation of the impact of a citywide park renovation initiative on physical activity, psychosocial health, and community well-being. The PARCS study, although ongoing, has developed several approaches to improve participant engagement: building trust with communities, adapting the study protocol to meet participants’ needs and to reflect their capacity for participation, operational flexibility, and developing tracking systems. These strategies may help researchers anticipate and respond to participant engagement challenges in community-based studies, particularly in low-income communities of color. JMIR Publications 2021-03-24 /pmc/articles/PMC8294636/ /pubmed/33759799 http://dx.doi.org/10.2196/18591 Text en ©Emily B Ferris, Katarzyna Wyka, Kelly R Evenson, Joan M Dorn, Lorna Thorpe, Diane Catellier, Terry T-K Huang. Originally published in JMIR Formative Research (http://formative.jmir.org), 24.03.2021. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on http://formative.jmir.org, as well as this copyright and license information must be included.
spellingShingle Viewpoint
Ferris, Emily B
Wyka, Katarzyna
Evenson, Kelly R
Dorn, Joan M
Thorpe, Lorna
Catellier, Diane
Huang, Terry T-K
Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods
title Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods
title_full Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods
title_fullStr Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods
title_full_unstemmed Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods
title_short Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods
title_sort recruitment and retention strategies for community-based longitudinal studies in diverse urban neighborhoods
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8294636/
https://www.ncbi.nlm.nih.gov/pubmed/33759799
http://dx.doi.org/10.2196/18591
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