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Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments

Cerebral Visual Impairment (CVI) is an umbrella term which includes abnormalities in visual acuity, or contrast sensitivity or colour; ocular motility; visual field and the conscious and unconscious filtering or processing of visual input. Children with CVI have specific needs and problems relating...

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Detalles Bibliográficos
Autores principales: Goodenough, Trudy, Pease, Anna, Williams, Cathy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8295497/
https://www.ncbi.nlm.nih.gov/pubmed/34305554
http://dx.doi.org/10.3389/fnhum.2021.689683
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author Goodenough, Trudy
Pease, Anna
Williams, Cathy
author_facet Goodenough, Trudy
Pease, Anna
Williams, Cathy
author_sort Goodenough, Trudy
collection PubMed
description Cerebral Visual Impairment (CVI) is an umbrella term which includes abnormalities in visual acuity, or contrast sensitivity or colour; ocular motility; visual field and the conscious and unconscious filtering or processing of visual input. Children with CVI have specific needs and problems relating to their development from infancy to adulthood which can impact on their wellbeing. Recent research indicates the complexities of living with CVI but there remains limited information of the full impact of CVI on families’ everyday lives. The qualitative interviews reported here explored families’ experiences to discover the impact of CVI on all aspects of everyday life. Parents and children (aged 6–18) were invited to participate in semi-structured interviews, either face to face, by phone or video call between January 2018 and February 2019. Topics covered everyday practicalities of living with CVI, focusing on challenges and what worked well at school and home. Interviews were audio-recorded and subject to thematic analysis to look for patterns across the data. Twenty families took part in interviews, with eight children/young people within those families contributing interviews of their own. Four themes were developed from the interviews: (1) Assessment and understanding implications of CVI, (2) Education, (3) Family life, (4) Psychological wellbeing and quality of life. The interviews provide valuable insights into the impact of living with CVI and highlight the need for more awareness of the condition among professionals in both health and education settings.
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spelling pubmed-82954972021-07-23 Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments Goodenough, Trudy Pease, Anna Williams, Cathy Front Hum Neurosci Neuroscience Cerebral Visual Impairment (CVI) is an umbrella term which includes abnormalities in visual acuity, or contrast sensitivity or colour; ocular motility; visual field and the conscious and unconscious filtering or processing of visual input. Children with CVI have specific needs and problems relating to their development from infancy to adulthood which can impact on their wellbeing. Recent research indicates the complexities of living with CVI but there remains limited information of the full impact of CVI on families’ everyday lives. The qualitative interviews reported here explored families’ experiences to discover the impact of CVI on all aspects of everyday life. Parents and children (aged 6–18) were invited to participate in semi-structured interviews, either face to face, by phone or video call between January 2018 and February 2019. Topics covered everyday practicalities of living with CVI, focusing on challenges and what worked well at school and home. Interviews were audio-recorded and subject to thematic analysis to look for patterns across the data. Twenty families took part in interviews, with eight children/young people within those families contributing interviews of their own. Four themes were developed from the interviews: (1) Assessment and understanding implications of CVI, (2) Education, (3) Family life, (4) Psychological wellbeing and quality of life. The interviews provide valuable insights into the impact of living with CVI and highlight the need for more awareness of the condition among professionals in both health and education settings. Frontiers Media S.A. 2021-07-08 /pmc/articles/PMC8295497/ /pubmed/34305554 http://dx.doi.org/10.3389/fnhum.2021.689683 Text en Copyright © 2021 Goodenough, Pease and Williams. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Neuroscience
Goodenough, Trudy
Pease, Anna
Williams, Cathy
Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments
title Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments
title_full Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments
title_fullStr Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments
title_full_unstemmed Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments
title_short Bridging the Gap: Parent and Child Perspectives of Living With Cerebral Visual Impairments
title_sort bridging the gap: parent and child perspectives of living with cerebral visual impairments
topic Neuroscience
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8295497/
https://www.ncbi.nlm.nih.gov/pubmed/34305554
http://dx.doi.org/10.3389/fnhum.2021.689683
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