Cargando…

The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care

Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care conducted in West Sweden. The aim of this study was to des...

Descripción completa

Detalles Bibliográficos
Autores principales: de Flon, Malin, Glaffey, Gisela, Jarl, Linda, Sellbrant, Kristin, Nilsson, Stefan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8296051/
https://www.ncbi.nlm.nih.gov/pubmed/34207704
http://dx.doi.org/10.3390/ijerph18126241
_version_ 1783725548746309632
author de Flon, Malin
Glaffey, Gisela
Jarl, Linda
Sellbrant, Kristin
Nilsson, Stefan
author_facet de Flon, Malin
Glaffey, Gisela
Jarl, Linda
Sellbrant, Kristin
Nilsson, Stefan
author_sort de Flon, Malin
collection PubMed
description Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care conducted in West Sweden. The aim of this study was to describe how children with cancer and parents experienced receiving care at home. After purposive sampling, six children with cancer aged 6–16 and eight parents participated. Semistructured interviews were performed, and the data were analysed using qualitative content analysis. Four main categories emerged: save time and energy in the family; maintain everyday life; feel trust in the healthcare professionals; mixed feelings about getting treatment at home. This hospital-based home care project created good conditions for both children with cancer and their parents to feel secure. In addition, home care can be very child-centric, whereby the caregivers involve the children by taking their thoughts and utterances into account.
format Online
Article
Text
id pubmed-8296051
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher MDPI
record_format MEDLINE/PubMed
spelling pubmed-82960512021-07-23 The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care de Flon, Malin Glaffey, Gisela Jarl, Linda Sellbrant, Kristin Nilsson, Stefan Int J Environ Res Public Health Article Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care conducted in West Sweden. The aim of this study was to describe how children with cancer and parents experienced receiving care at home. After purposive sampling, six children with cancer aged 6–16 and eight parents participated. Semistructured interviews were performed, and the data were analysed using qualitative content analysis. Four main categories emerged: save time and energy in the family; maintain everyday life; feel trust in the healthcare professionals; mixed feelings about getting treatment at home. This hospital-based home care project created good conditions for both children with cancer and their parents to feel secure. In addition, home care can be very child-centric, whereby the caregivers involve the children by taking their thoughts and utterances into account. MDPI 2021-06-09 /pmc/articles/PMC8296051/ /pubmed/34207704 http://dx.doi.org/10.3390/ijerph18126241 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
de Flon, Malin
Glaffey, Gisela
Jarl, Linda
Sellbrant, Kristin
Nilsson, Stefan
The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care
title The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care
title_full The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care
title_fullStr The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care
title_full_unstemmed The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care
title_short The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care
title_sort childhood cancer centre is coming home: experiences of hospital-based home care
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8296051/
https://www.ncbi.nlm.nih.gov/pubmed/34207704
http://dx.doi.org/10.3390/ijerph18126241
work_keys_str_mv AT deflonmalin thechildhoodcancercentreiscominghomeexperiencesofhospitalbasedhomecare
AT glaffeygisela thechildhoodcancercentreiscominghomeexperiencesofhospitalbasedhomecare
AT jarllinda thechildhoodcancercentreiscominghomeexperiencesofhospitalbasedhomecare
AT sellbrantkristin thechildhoodcancercentreiscominghomeexperiencesofhospitalbasedhomecare
AT nilssonstefan thechildhoodcancercentreiscominghomeexperiencesofhospitalbasedhomecare
AT deflonmalin childhoodcancercentreiscominghomeexperiencesofhospitalbasedhomecare
AT glaffeygisela childhoodcancercentreiscominghomeexperiencesofhospitalbasedhomecare
AT jarllinda childhoodcancercentreiscominghomeexperiencesofhospitalbasedhomecare
AT sellbrantkristin childhoodcancercentreiscominghomeexperiencesofhospitalbasedhomecare
AT nilssonstefan childhoodcancercentreiscominghomeexperiencesofhospitalbasedhomecare