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The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care
Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care conducted in West Sweden. The aim of this study was to des...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8296051/ https://www.ncbi.nlm.nih.gov/pubmed/34207704 http://dx.doi.org/10.3390/ijerph18126241 |
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author | de Flon, Malin Glaffey, Gisela Jarl, Linda Sellbrant, Kristin Nilsson, Stefan |
author_facet | de Flon, Malin Glaffey, Gisela Jarl, Linda Sellbrant, Kristin Nilsson, Stefan |
author_sort | de Flon, Malin |
collection | PubMed |
description | Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care conducted in West Sweden. The aim of this study was to describe how children with cancer and parents experienced receiving care at home. After purposive sampling, six children with cancer aged 6–16 and eight parents participated. Semistructured interviews were performed, and the data were analysed using qualitative content analysis. Four main categories emerged: save time and energy in the family; maintain everyday life; feel trust in the healthcare professionals; mixed feelings about getting treatment at home. This hospital-based home care project created good conditions for both children with cancer and their parents to feel secure. In addition, home care can be very child-centric, whereby the caregivers involve the children by taking their thoughts and utterances into account. |
format | Online Article Text |
id | pubmed-8296051 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-82960512021-07-23 The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care de Flon, Malin Glaffey, Gisela Jarl, Linda Sellbrant, Kristin Nilsson, Stefan Int J Environ Res Public Health Article Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care conducted in West Sweden. The aim of this study was to describe how children with cancer and parents experienced receiving care at home. After purposive sampling, six children with cancer aged 6–16 and eight parents participated. Semistructured interviews were performed, and the data were analysed using qualitative content analysis. Four main categories emerged: save time and energy in the family; maintain everyday life; feel trust in the healthcare professionals; mixed feelings about getting treatment at home. This hospital-based home care project created good conditions for both children with cancer and their parents to feel secure. In addition, home care can be very child-centric, whereby the caregivers involve the children by taking their thoughts and utterances into account. MDPI 2021-06-09 /pmc/articles/PMC8296051/ /pubmed/34207704 http://dx.doi.org/10.3390/ijerph18126241 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article de Flon, Malin Glaffey, Gisela Jarl, Linda Sellbrant, Kristin Nilsson, Stefan The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care |
title | The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care |
title_full | The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care |
title_fullStr | The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care |
title_full_unstemmed | The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care |
title_short | The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care |
title_sort | childhood cancer centre is coming home: experiences of hospital-based home care |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8296051/ https://www.ncbi.nlm.nih.gov/pubmed/34207704 http://dx.doi.org/10.3390/ijerph18126241 |
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