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A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers

Patients with type 1 diabetes mellitus at the age of 16–25 face the challenges of the deterioration of disease control and accelerated exacerbation. Providing interventions that meet patient’s healthcare needs can reduce the impact and improve health outcome. The purpose of this study was to identif...

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Autores principales: Chiang, Yuehtao, Tsay, Peikwei, Chen, Chiwen, Hsu, Chienlung, Yu, Hsingyi, Chang, Chiwen, Lo, Fusung, Moons, Philip
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8296953/
https://www.ncbi.nlm.nih.gov/pubmed/34281086
http://dx.doi.org/10.3390/ijerph18137149
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author Chiang, Yuehtao
Tsay, Peikwei
Chen, Chiwen
Hsu, Chienlung
Yu, Hsingyi
Chang, Chiwen
Lo, Fusung
Moons, Philip
author_facet Chiang, Yuehtao
Tsay, Peikwei
Chen, Chiwen
Hsu, Chienlung
Yu, Hsingyi
Chang, Chiwen
Lo, Fusung
Moons, Philip
author_sort Chiang, Yuehtao
collection PubMed
description Patients with type 1 diabetes mellitus at the age of 16–25 face the challenges of the deterioration of disease control and accelerated exacerbation. Providing interventions that meet patient’s healthcare needs can reduce the impact and improve health outcome. The purpose of this study was to identify the healthcare needs of patients with type 1 diabetes during the adolescence to adulthood transition period from the perspectives of patients, parents and healthcare providers. A two-round Delphi study was conducted among 48 participants, and included 17 patients, 16 primary caregivers, and 15 healthcare providers. The central tendency and dispersion were computed to establish a consensus. Seventy-one healthcare needs were identified across five dimensions—technology, external support, internal support, management, and healthcare—and 56 were considered as important healthcare needs and with a moderate to high level of agreement. Meanwhile, patients, primary caregivers, and healthcare providers were found to display significantly different opinions (p < 0.05) for 23 healthcare needs. This study concluded the consensus of the healthcare needs of patients with type 1 diabetes mellitus during the adolescence to adulthood transition period from a systematic investigation. The findings can serve as reference for developing transitional intervention strategies.
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spelling pubmed-82969532021-07-23 A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers Chiang, Yuehtao Tsay, Peikwei Chen, Chiwen Hsu, Chienlung Yu, Hsingyi Chang, Chiwen Lo, Fusung Moons, Philip Int J Environ Res Public Health Article Patients with type 1 diabetes mellitus at the age of 16–25 face the challenges of the deterioration of disease control and accelerated exacerbation. Providing interventions that meet patient’s healthcare needs can reduce the impact and improve health outcome. The purpose of this study was to identify the healthcare needs of patients with type 1 diabetes during the adolescence to adulthood transition period from the perspectives of patients, parents and healthcare providers. A two-round Delphi study was conducted among 48 participants, and included 17 patients, 16 primary caregivers, and 15 healthcare providers. The central tendency and dispersion were computed to establish a consensus. Seventy-one healthcare needs were identified across five dimensions—technology, external support, internal support, management, and healthcare—and 56 were considered as important healthcare needs and with a moderate to high level of agreement. Meanwhile, patients, primary caregivers, and healthcare providers were found to display significantly different opinions (p < 0.05) for 23 healthcare needs. This study concluded the consensus of the healthcare needs of patients with type 1 diabetes mellitus during the adolescence to adulthood transition period from a systematic investigation. The findings can serve as reference for developing transitional intervention strategies. MDPI 2021-07-04 /pmc/articles/PMC8296953/ /pubmed/34281086 http://dx.doi.org/10.3390/ijerph18137149 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Chiang, Yuehtao
Tsay, Peikwei
Chen, Chiwen
Hsu, Chienlung
Yu, Hsingyi
Chang, Chiwen
Lo, Fusung
Moons, Philip
A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers
title A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers
title_full A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers
title_fullStr A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers
title_full_unstemmed A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers
title_short A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare Providers
title_sort delphi study on the healthcare needs of patients with type 1 diabetes during the transition from adolescence to adulthood: consensus among patients, primary caregivers, and healthcare providers
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8296953/
https://www.ncbi.nlm.nih.gov/pubmed/34281086
http://dx.doi.org/10.3390/ijerph18137149
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