Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania

OBJECTIVES: To provide lay information about genetics and sickle cell disease (SCD) and to identify and address ethical issues concerning the Sickle Cell Disease Genomics of Africa Network covering autonomy and research decision-making, risk of SCD complications and organ damage, returning of genomi...

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Detalles Bibliográficos
Autores principales: Anie, Kofi A, Olayemi, Edeghonghon, Paintsil, Vivian, Owusu-Dabo, Ellis, Adeyemo, Titilope Adenike, Sani, Mahmoud U, Galadanci, Najibah Aliyu, Nnodu, Obiageli, Tluway, Furahini, Adjei, David Nana, Mensah, Peter, Sarfo-Antwi, Joseph, Nwokobia, Henry, Gambo, Awwal, Benjamin, Adebola, Salim, Arafa, Osae-Larbi, Judith A, Ofori-Acquah, Solomon Fiifi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2021
Materias:
Haematology (Incl Blood Transfusion)
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8311318/
https://www.ncbi.nlm.nih.gov/pubmed/34301659
http://dx.doi.org/10.1136/bmjopen-2020-048208

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8311318/
https://www.ncbi.nlm.nih.gov/pubmed/34301659
http://dx.doi.org/10.1136/bmjopen-2020-048208

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