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Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses

OBJECTIVES: The primary objective was to develop an educational video to teach patients with rheumatoid arthritis (RA) self-assessment of their disease activity. Secondary objectives were to validate the video, identify the challenges in producing it, and the responses to these challenges. METHODS:...

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Autores principales: Ziade, Nelly, Arayssi, Thurayya, Elzorkany, Bassel, Daher, Amani, Karam, Ghada Abi, Jbara, Mohammad Abu, Aiko, Alla, Alam, Elie, Emadi, Samar Al, Mashaleh, Manal Al, Badsha, Humeira, Kibbi, Lina El, Halabi, Hussein, Harifi, Ghita, Khan, Bhavna, Masri, Abdel Fattah, Menassa, Jeanine, Merashli, Mira, Merheb, Georges, Messaykeh, Jamil, Mroue’, Kamel, Saad, Sahar, Salloum, Nelly, Uthman, Imad, Masri, Basel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: The Mediterranean Journal of Rheumatology (MJR) 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8314883/
https://www.ncbi.nlm.nih.gov/pubmed/34386703
http://dx.doi.org/10.31138/mjr.32.1.66
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author Ziade, Nelly
Arayssi, Thurayya
Elzorkany, Bassel
Daher, Amani
Karam, Ghada Abi
Jbara, Mohammad Abu
Aiko, Alla
Alam, Elie
Emadi, Samar Al
Mashaleh, Manal Al
Badsha, Humeira
Kibbi, Lina El
Halabi, Hussein
Harifi, Ghita
Khan, Bhavna
Masri, Abdel Fattah
Menassa, Jeanine
Merashli, Mira
Merheb, Georges
Messaykeh, Jamil
Mroue’, Kamel
Saad, Sahar
Salloum, Nelly
Uthman, Imad
Masri, Basel
author_facet Ziade, Nelly
Arayssi, Thurayya
Elzorkany, Bassel
Daher, Amani
Karam, Ghada Abi
Jbara, Mohammad Abu
Aiko, Alla
Alam, Elie
Emadi, Samar Al
Mashaleh, Manal Al
Badsha, Humeira
Kibbi, Lina El
Halabi, Hussein
Harifi, Ghita
Khan, Bhavna
Masri, Abdel Fattah
Menassa, Jeanine
Merashli, Mira
Merheb, Georges
Messaykeh, Jamil
Mroue’, Kamel
Saad, Sahar
Salloum, Nelly
Uthman, Imad
Masri, Basel
author_sort Ziade, Nelly
collection PubMed
description OBJECTIVES: The primary objective was to develop an educational video to teach patients with rheumatoid arthritis (RA) self-assessment of their disease activity. Secondary objectives were to validate the video, identify the challenges in producing it, and the responses to these challenges. METHODS: Rheumatologists from 7 Middle Eastern Arab countries (MEAC) discussed unmet needs in the education of patients with RA. They reviewed pre-existing educational audiovisual material and drafted the script for a new video in Arabic. The video was produced in collaboration with a technical team, then validated by patients using a standardized interview. At each step of production, challenges were identified. RESULTS: Twenty-three rheumatologists from MEAC identified unmet needs in patients’ education. A video was produced, explaining the concepts of treat-to-target and showing a patient performing self-assessment using DAS-28. Sixty-two patients were interviewed for validation and found the video to be useful and easy to understand, albeit not replacing the physician’s visit. Most common challenges encountered included acceptance of patient empowerment, agreement on DAS-28 as composite measure, production of a comprehensible written Arabic text, and addressing the population cultural mix. CONCLUSION: Despite challenges, the video was well accepted among patients and can be used for clinical and research purposes. It is particularly useful in pandemic periods where social distancing is recommended.
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spelling pubmed-83148832021-08-11 Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses Ziade, Nelly Arayssi, Thurayya Elzorkany, Bassel Daher, Amani Karam, Ghada Abi Jbara, Mohammad Abu Aiko, Alla Alam, Elie Emadi, Samar Al Mashaleh, Manal Al Badsha, Humeira Kibbi, Lina El Halabi, Hussein Harifi, Ghita Khan, Bhavna Masri, Abdel Fattah Menassa, Jeanine Merashli, Mira Merheb, Georges Messaykeh, Jamil Mroue’, Kamel Saad, Sahar Salloum, Nelly Uthman, Imad Masri, Basel Mediterr J Rheumatol Original Paper OBJECTIVES: The primary objective was to develop an educational video to teach patients with rheumatoid arthritis (RA) self-assessment of their disease activity. Secondary objectives were to validate the video, identify the challenges in producing it, and the responses to these challenges. METHODS: Rheumatologists from 7 Middle Eastern Arab countries (MEAC) discussed unmet needs in the education of patients with RA. They reviewed pre-existing educational audiovisual material and drafted the script for a new video in Arabic. The video was produced in collaboration with a technical team, then validated by patients using a standardized interview. At each step of production, challenges were identified. RESULTS: Twenty-three rheumatologists from MEAC identified unmet needs in patients’ education. A video was produced, explaining the concepts of treat-to-target and showing a patient performing self-assessment using DAS-28. Sixty-two patients were interviewed for validation and found the video to be useful and easy to understand, albeit not replacing the physician’s visit. Most common challenges encountered included acceptance of patient empowerment, agreement on DAS-28 as composite measure, production of a comprehensible written Arabic text, and addressing the population cultural mix. CONCLUSION: Despite challenges, the video was well accepted among patients and can be used for clinical and research purposes. It is particularly useful in pandemic periods where social distancing is recommended. The Mediterranean Journal of Rheumatology (MJR) 2021-03-04 /pmc/articles/PMC8314883/ /pubmed/34386703 http://dx.doi.org/10.31138/mjr.32.1.66 Text en © 2021 The Mediterranean Journal of Rheumatology (MJR) https://creativecommons.org/licenses/by/4.0/This work is licensed under and Creative Commons Attribution-NonCommercial 4.0 International License.
spellingShingle Original Paper
Ziade, Nelly
Arayssi, Thurayya
Elzorkany, Bassel
Daher, Amani
Karam, Ghada Abi
Jbara, Mohammad Abu
Aiko, Alla
Alam, Elie
Emadi, Samar Al
Mashaleh, Manal Al
Badsha, Humeira
Kibbi, Lina El
Halabi, Hussein
Harifi, Ghita
Khan, Bhavna
Masri, Abdel Fattah
Menassa, Jeanine
Merashli, Mira
Merheb, Georges
Messaykeh, Jamil
Mroue’, Kamel
Saad, Sahar
Salloum, Nelly
Uthman, Imad
Masri, Basel
Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses
title Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses
title_full Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses
title_fullStr Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses
title_full_unstemmed Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses
title_short Development of an Educational Video for Self-Assessment of Patients with RA: Steps, Challenges, and Responses
title_sort development of an educational video for self-assessment of patients with ra: steps, challenges, and responses
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8314883/
https://www.ncbi.nlm.nih.gov/pubmed/34386703
http://dx.doi.org/10.31138/mjr.32.1.66
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