Cargando…

Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis

OBJECTIVE: The systematic development of an intervention to improve disease activity-based management of rheumatoid arthritis (RA) in daily clinical practice that is based on patient-level barriers. METHODS: The self-management strategy was developed through a step-wise approach, in a process of co-...

Descripción completa

Detalles Bibliográficos
Autores principales: Spijk-de Jonge, Marieke J., Manders, Sofie H. M., Huis, Anita M. P., Elwyn, Glyn, van de Laar, Mart A. F. J., van Riel, Piet L. C. M., Hulscher, Marlies E. J. L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: The Mediterranean Journal of Rheumatology (MJR) 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8314884/
https://www.ncbi.nlm.nih.gov/pubmed/34386699
http://dx.doi.org/10.31138/mjr.32.1.21
_version_ 1783729629517840384
author Spijk-de Jonge, Marieke J.
Manders, Sofie H. M.
Huis, Anita M. P.
Elwyn, Glyn
van de Laar, Mart A. F. J.
van Riel, Piet L. C. M.
Hulscher, Marlies E. J. L.
author_facet Spijk-de Jonge, Marieke J.
Manders, Sofie H. M.
Huis, Anita M. P.
Elwyn, Glyn
van de Laar, Mart A. F. J.
van Riel, Piet L. C. M.
Hulscher, Marlies E. J. L.
author_sort Spijk-de Jonge, Marieke J.
collection PubMed
description OBJECTIVE: The systematic development of an intervention to improve disease activity-based management of rheumatoid arthritis (RA) in daily clinical practice that is based on patient-level barriers. METHODS: The self-management strategy was developed through a step-wise approach, in a process of co-design with all stakeholders and by addressing patient level barriers to RA management based on disease activity. RESULTS: The resulting DAS-pass strategy consists of decision supportive information and guidance by a specialised rheumatology nurse. It aims to increase patients’ knowledge on DAS28, to empower patients to be involved in disease management, and to improve patients’ medication beliefs. The decision supportive information includes an informational leaflet and a patient held record. The nurse individualises the information, stimulates patients to communicate about disease activity, and offers the opportunity for questions or additional support. CONCLUSION: The DAS-pass strategy was found helpful by stakeholders. It can be used to improve RA daily clinical practice. Our systematic approach can be used to improve patient knowledge and self-management on other RA related topics. Also, it can be used to improve the management of other chronic conditions. We therefore provide a detailed description of our methodology to assist those interested in developing an evidence-based strategy for educating and empowering patients.
format Online
Article
Text
id pubmed-8314884
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher The Mediterranean Journal of Rheumatology (MJR)
record_format MEDLINE/PubMed
spelling pubmed-83148842021-08-11 Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis Spijk-de Jonge, Marieke J. Manders, Sofie H. M. Huis, Anita M. P. Elwyn, Glyn van de Laar, Mart A. F. J. van Riel, Piet L. C. M. Hulscher, Marlies E. J. L. Mediterr J Rheumatol Original Paper OBJECTIVE: The systematic development of an intervention to improve disease activity-based management of rheumatoid arthritis (RA) in daily clinical practice that is based on patient-level barriers. METHODS: The self-management strategy was developed through a step-wise approach, in a process of co-design with all stakeholders and by addressing patient level barriers to RA management based on disease activity. RESULTS: The resulting DAS-pass strategy consists of decision supportive information and guidance by a specialised rheumatology nurse. It aims to increase patients’ knowledge on DAS28, to empower patients to be involved in disease management, and to improve patients’ medication beliefs. The decision supportive information includes an informational leaflet and a patient held record. The nurse individualises the information, stimulates patients to communicate about disease activity, and offers the opportunity for questions or additional support. CONCLUSION: The DAS-pass strategy was found helpful by stakeholders. It can be used to improve RA daily clinical practice. Our systematic approach can be used to improve patient knowledge and self-management on other RA related topics. Also, it can be used to improve the management of other chronic conditions. We therefore provide a detailed description of our methodology to assist those interested in developing an evidence-based strategy for educating and empowering patients. The Mediterranean Journal of Rheumatology (MJR) 2021-03-31 /pmc/articles/PMC8314884/ /pubmed/34386699 http://dx.doi.org/10.31138/mjr.32.1.21 Text en © 2021 The Mediterranean Journal of Rheumatology (MJR) https://creativecommons.org/licenses/by/4.0/This work is licensed under and Creative Commons Attribution-NonCommercial 4.0 International License.
spellingShingle Original Paper
Spijk-de Jonge, Marieke J.
Manders, Sofie H. M.
Huis, Anita M. P.
Elwyn, Glyn
van de Laar, Mart A. F. J.
van Riel, Piet L. C. M.
Hulscher, Marlies E. J. L.
Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis
title Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis
title_full Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis
title_fullStr Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis
title_full_unstemmed Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis
title_short Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis
title_sort co-design of a disease activity based self-management approach for patients with rheumatoid arthritis
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8314884/
https://www.ncbi.nlm.nih.gov/pubmed/34386699
http://dx.doi.org/10.31138/mjr.32.1.21
work_keys_str_mv AT spijkdejongemariekej codesignofadiseaseactivitybasedselfmanagementapproachforpatientswithrheumatoidarthritis
AT manderssofiehm codesignofadiseaseactivitybasedselfmanagementapproachforpatientswithrheumatoidarthritis
AT huisanitamp codesignofadiseaseactivitybasedselfmanagementapproachforpatientswithrheumatoidarthritis
AT elwynglyn codesignofadiseaseactivitybasedselfmanagementapproachforpatientswithrheumatoidarthritis
AT vandelaarmartafj codesignofadiseaseactivitybasedselfmanagementapproachforpatientswithrheumatoidarthritis
AT vanrielpietlcm codesignofadiseaseactivitybasedselfmanagementapproachforpatientswithrheumatoidarthritis
AT hulschermarliesejl codesignofadiseaseactivitybasedselfmanagementapproachforpatientswithrheumatoidarthritis