Cargando…

Descriptive Review of Online Information Resources for People With Stroke: Protocol for a Scoping Review

BACKGROUND: People with stroke and their caregivers experience numerous information needs; internet-based resources may offer cost-effective ways to improve access to information about this condition and its management, including the availability of resources and support. The quality of online healt...

Descripción completa

Detalles Bibliográficos
Autores principales: Inglis-Jassiem, Gakeemah, Grimmer, Karen, Conradie, Thandi, Louw, Quinette
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8317032/
https://www.ncbi.nlm.nih.gov/pubmed/34255721
http://dx.doi.org/10.2196/23174
_version_ 1783729990768001024
author Inglis-Jassiem, Gakeemah
Grimmer, Karen
Conradie, Thandi
Louw, Quinette
author_facet Inglis-Jassiem, Gakeemah
Grimmer, Karen
Conradie, Thandi
Louw, Quinette
author_sort Inglis-Jassiem, Gakeemah
collection PubMed
description BACKGROUND: People with stroke and their caregivers experience numerous information needs; internet-based resources may offer cost-effective ways to improve access to information about this condition and its management, including the availability of resources and support. The quality of online health information is, therefore, an important consideration for both developers and consumers of these online resources. OBJECTIVE: This study aims to map and evaluate the content, readability, understandability, design, and quality characteristics of freely available online information resources (ie, websites) that empower people with stroke and their caregivers with information and self-help strategies poststroke. METHODS: This descriptive review will follow the five systematic and rigorous methodological steps that are recommended for scoping reviews, which include the following: (1) identifying the research question, (2) identifying relevant studies, (3) selecting the studies, (4) charting the data, and (5) collating, summarizing, and reporting the results. Data will then be synthesized and analyzed thematically. RESULTS: As of February 2021, the scoping review is in the data extraction stage. Data will be synthesized, and the first results are expected to be submitted for publication in an open-access peer-reviewed journal in August 2021. In addition, we will develop an accessible summary of the results for stakeholder meetings. Ethical approval is not required for this review, as it will only include publicly available information. CONCLUSIONS: This study is novel and will evaluate the typology, content, and design-related criteria, including accessibility, aesthetics, navigability, interactivity, privacy, and data protection, of online information resources for stroke. The review will be limited to online resources published in English. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/23174
format Online
Article
Text
id pubmed-8317032
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher JMIR Publications
record_format MEDLINE/PubMed
spelling pubmed-83170322021-08-11 Descriptive Review of Online Information Resources for People With Stroke: Protocol for a Scoping Review Inglis-Jassiem, Gakeemah Grimmer, Karen Conradie, Thandi Louw, Quinette JMIR Res Protoc Protocol BACKGROUND: People with stroke and their caregivers experience numerous information needs; internet-based resources may offer cost-effective ways to improve access to information about this condition and its management, including the availability of resources and support. The quality of online health information is, therefore, an important consideration for both developers and consumers of these online resources. OBJECTIVE: This study aims to map and evaluate the content, readability, understandability, design, and quality characteristics of freely available online information resources (ie, websites) that empower people with stroke and their caregivers with information and self-help strategies poststroke. METHODS: This descriptive review will follow the five systematic and rigorous methodological steps that are recommended for scoping reviews, which include the following: (1) identifying the research question, (2) identifying relevant studies, (3) selecting the studies, (4) charting the data, and (5) collating, summarizing, and reporting the results. Data will then be synthesized and analyzed thematically. RESULTS: As of February 2021, the scoping review is in the data extraction stage. Data will be synthesized, and the first results are expected to be submitted for publication in an open-access peer-reviewed journal in August 2021. In addition, we will develop an accessible summary of the results for stakeholder meetings. Ethical approval is not required for this review, as it will only include publicly available information. CONCLUSIONS: This study is novel and will evaluate the typology, content, and design-related criteria, including accessibility, aesthetics, navigability, interactivity, privacy, and data protection, of online information resources for stroke. The review will be limited to online resources published in English. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/23174 JMIR Publications 2021-07-13 /pmc/articles/PMC8317032/ /pubmed/34255721 http://dx.doi.org/10.2196/23174 Text en ©Gakeemah Inglis-Jassiem, Karen Grimmer, Thandi Conradie, Quinette Louw. Originally published in JMIR Research Protocols (https://www.researchprotocols.org), 13.07.2021. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on https://www.researchprotocols.org, as well as this copyright and license information must be included.
spellingShingle Protocol
Inglis-Jassiem, Gakeemah
Grimmer, Karen
Conradie, Thandi
Louw, Quinette
Descriptive Review of Online Information Resources for People With Stroke: Protocol for a Scoping Review
title Descriptive Review of Online Information Resources for People With Stroke: Protocol for a Scoping Review
title_full Descriptive Review of Online Information Resources for People With Stroke: Protocol for a Scoping Review
title_fullStr Descriptive Review of Online Information Resources for People With Stroke: Protocol for a Scoping Review
title_full_unstemmed Descriptive Review of Online Information Resources for People With Stroke: Protocol for a Scoping Review
title_short Descriptive Review of Online Information Resources for People With Stroke: Protocol for a Scoping Review
title_sort descriptive review of online information resources for people with stroke: protocol for a scoping review
topic Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8317032/
https://www.ncbi.nlm.nih.gov/pubmed/34255721
http://dx.doi.org/10.2196/23174
work_keys_str_mv AT inglisjassiemgakeemah descriptivereviewofonlineinformationresourcesforpeoplewithstrokeprotocolforascopingreview
AT grimmerkaren descriptivereviewofonlineinformationresourcesforpeoplewithstrokeprotocolforascopingreview
AT conradiethandi descriptivereviewofonlineinformationresourcesforpeoplewithstrokeprotocolforascopingreview
AT louwquinette descriptivereviewofonlineinformationresourcesforpeoplewithstrokeprotocolforascopingreview