Return of individual research results: What do participants prefer and expect?

Newer data platforms offer increased opportunity to share multidimensional health data with research participants, but the preferences of participants for which data to receive and how is evolving. Our objective is to describe the preferences and expectations of participants for the return of indivi...

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Detalles Bibliográficos
Autores principales: Sayeed, Sabina, Califf, Robert, Green, Robert, Wong, Celeste, Mahaffey, Kenneth, Gambhir, Sanjiv Sam, Mega, Jessica, Patrick-Lake, Bray, Frazier, Kaylyn, Pignone, Michael, Hernandez, Adrian, Shah, Svati H., Fan, Alice C., Krüg, Sarah, Shaack, Terry, Shore, Scarlet, Spielman, Susie, Eckstrand, Julie, Wong, Charlene A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2021
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8320928/
https://www.ncbi.nlm.nih.gov/pubmed/34324495
http://dx.doi.org/10.1371/journal.pone.0254153

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