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Redevelopment of the Predict: Breast Cancer website and recommendations for developing interfaces to support decision‐making

OBJECTIVES: To develop a new interface for the widely used prognostic breast cancer tool: Predict: Breast Cancer. To facilitate decision‐making around post‐surgery breast cancer treatments. To derive recommendations for communicating the outputs of prognostic models to patients and their clinicians....

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Autores principales: Farmer, George D., Pearson, Mike, Skylark, William J., Freeman, Alexandra L. J., Spiegelhalter, David J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8335820/
https://www.ncbi.nlm.nih.gov/pubmed/34152085
http://dx.doi.org/10.1002/cam4.4072
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author Farmer, George D.
Pearson, Mike
Skylark, William J.
Freeman, Alexandra L. J.
Spiegelhalter, David J.
author_facet Farmer, George D.
Pearson, Mike
Skylark, William J.
Freeman, Alexandra L. J.
Spiegelhalter, David J.
author_sort Farmer, George D.
collection PubMed
description OBJECTIVES: To develop a new interface for the widely used prognostic breast cancer tool: Predict: Breast Cancer. To facilitate decision‐making around post‐surgery breast cancer treatments. To derive recommendations for communicating the outputs of prognostic models to patients and their clinicians. METHOD: We employed a user‐centred design process comprised of background research and iterative testing of prototypes with clinicians and patients. Methods included surveys, focus groups and usability testing. RESULTS: The updated interface now caters to the needs of a wider audience through the addition of new visualisations, instantaneous updating of results, enhanced explanatory information and the addition of new predictors and outputs. A programme of future research was identified and is now underway, including the provision of quantitative data on the adverse effects of adjuvant breast cancer treatments. Based on our user‐centred design process, we identify six recommendations for communicating the outputs of prognostic models including the need to contextualise statistics, identify and address gaps in knowledge, and the critical importance of engaging with prospective users when designing communications. CONCLUSIONS: For prognostic algorithms to fulfil their potential to assist with decision‐making they need carefully designed interfaces. User‐centred design puts patients and clinicians needs at the forefront, allowing them to derive the maximum benefit from prognostic models.
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spelling pubmed-83358202021-08-09 Redevelopment of the Predict: Breast Cancer website and recommendations for developing interfaces to support decision‐making Farmer, George D. Pearson, Mike Skylark, William J. Freeman, Alexandra L. J. Spiegelhalter, David J. Cancer Med Clinical Cancer Research OBJECTIVES: To develop a new interface for the widely used prognostic breast cancer tool: Predict: Breast Cancer. To facilitate decision‐making around post‐surgery breast cancer treatments. To derive recommendations for communicating the outputs of prognostic models to patients and their clinicians. METHOD: We employed a user‐centred design process comprised of background research and iterative testing of prototypes with clinicians and patients. Methods included surveys, focus groups and usability testing. RESULTS: The updated interface now caters to the needs of a wider audience through the addition of new visualisations, instantaneous updating of results, enhanced explanatory information and the addition of new predictors and outputs. A programme of future research was identified and is now underway, including the provision of quantitative data on the adverse effects of adjuvant breast cancer treatments. Based on our user‐centred design process, we identify six recommendations for communicating the outputs of prognostic models including the need to contextualise statistics, identify and address gaps in knowledge, and the critical importance of engaging with prospective users when designing communications. CONCLUSIONS: For prognostic algorithms to fulfil their potential to assist with decision‐making they need carefully designed interfaces. User‐centred design puts patients and clinicians needs at the forefront, allowing them to derive the maximum benefit from prognostic models. John Wiley and Sons Inc. 2021-06-21 /pmc/articles/PMC8335820/ /pubmed/34152085 http://dx.doi.org/10.1002/cam4.4072 Text en © 2021 The Authors. Cancer Medicine published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Clinical Cancer Research
Farmer, George D.
Pearson, Mike
Skylark, William J.
Freeman, Alexandra L. J.
Spiegelhalter, David J.
Redevelopment of the Predict: Breast Cancer website and recommendations for developing interfaces to support decision‐making
title Redevelopment of the Predict: Breast Cancer website and recommendations for developing interfaces to support decision‐making
title_full Redevelopment of the Predict: Breast Cancer website and recommendations for developing interfaces to support decision‐making
title_fullStr Redevelopment of the Predict: Breast Cancer website and recommendations for developing interfaces to support decision‐making
title_full_unstemmed Redevelopment of the Predict: Breast Cancer website and recommendations for developing interfaces to support decision‐making
title_short Redevelopment of the Predict: Breast Cancer website and recommendations for developing interfaces to support decision‐making
title_sort redevelopment of the predict: breast cancer website and recommendations for developing interfaces to support decision‐making
topic Clinical Cancer Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8335820/
https://www.ncbi.nlm.nih.gov/pubmed/34152085
http://dx.doi.org/10.1002/cam4.4072
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