Cargando…

Health care transition for patients with vascular malformations: a French multicenter cross-sectional study

BACKGROUND: Health care transition (i.e., transition from pediatric to adult care) is challenging in chronic conditions but has been poorly studied in rare chronic skin diseases. We investigated the proportion of lost to follow-up among patients with superficial vascular malformations after health c...

Descripción completa

Detalles Bibliográficos
Autores principales:	Vermersch, Camille, Boccara, Olivia, Chiaverini, Christine, Mazereeuw-Hautier, Juliette, Sigg, Nina, Mallet, Stéphanie, Vabres, Pierre, Herbreteau, Denis, Le Touze, Anne, Maruani, Annabel, Leducq, Sophie
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8349005/ https://www.ncbi.nlm.nih.gov/pubmed/34362421 http://dx.doi.org/10.1186/s13023-021-01970-7

Ejemplares similares

Treatment of voluminous and complicated superficial slow-flow vascular malformations with sirolimus (PERFORMUS): protocol for a multicenter phase 2 trial with a randomized observational-phase design
por: Maruani, Annabel, et al.
Publicado: (2018)

Topical sirolimus 0.1% for treating cutaneous microcystic lymphatic malformations in children and adults (TOPICAL): protocol for a multicenter phase 2, within-person, randomized, double-blind, vehicle-controlled clinical trial
por: Leducq, Sophie, et al.
Publicado: (2019)

Lesion of the Anal Margin in a Young Child: A Quiz
por: LE HELLOCO, Claire, et al.
Publicado: (2022)

Perialar intertrigo in children and adolescents: A multicenter prospective study of 41 cases
por: Sanchez, Adrien, et al.
Publicado: (2022)

French national diagnosis and care protocol (PNDS, protocole national de diagnostic et de soins): cystic lymphatic malformations
por: Leboulanger, Nicolas, et al.
Publicado: (2023)

Effect of Beta-blockers on Extracranial Arteriovenous Malformations
por: CHASTANET, Sarah, et al.
Publicado: (2022)

Becker’s Naevus Syndrome with Breast Aplasia Due to Postzygotic Mutation of ACTB
por: RAMSPACHER, Jeanne, et al.
Publicado: (2022)

Pain and quality of life evaluation in patients with localized epidermolysis bullosa simplex
por: Brun, Jennifer, et al.
Publicado: (2017)

Prevalence of inherited ichthyosis in France: a study using capture-recapture method
por: Dreyfus, Isabelle, et al.
Publicado: (2014)

Characteristics, Natural Course and Treatment of Intramuscular Capillary-type Haemangioma: A Systematic Literature Review
por: ORLY, Jordan, et al.
Publicado: (2023)

Alitretinoin reduces erythema in inherited ichthyosis
por: Onnis, Giuliana, et al.
Publicado: (2018)

Designs used in published therapeutic studies of rare superficial vascular anomalies: a systematic literature search
por: Allemang-Trivalle, Aude, et al.
Publicado: (2023)

Oral epigallocatechin-3-gallate for treatment of dystrophic epidermolysis bullosa: a multicentre, randomized, crossover, double-blind, placebo-controlled clinical trial
por: Chiaverini, Christine, et al.
Publicado: (2016)

Prevalence and risk factors of vitamin D deficiency in inherited ichthyosis: A French prospective observational study performed in a reference center
por: Frascari, Flora, et al.
Publicado: (2014)

Topical sirolimus solution for lingual microcystic lymphatic malformations in children and adults (TOPGUN): study protocol for a multicenter, randomized, assessor-blinded, controlled, stepped-wedge clinical trial
por: Marchand, A., et al.
Publicado: (2022)

A Blue-pigmented Lesion on the Cheek in a Three-year-old Girl: A Quiz
por: MOREAU, Charlotte, et al.
Publicado: (2021)

Acute acral eruptions in children during the COVID-19 pandemic: Characteristics of 103 children and their family clusters
por: Hubiche, T., et al.
Publicado: (2021)

Specific-class Skin Side-effects of Drugs Might Compromise Blinding in Randomized Controlled Trials
por: DO-PHAM, Giao, et al.
Publicado: (2023)

Dermatologic manifestations in paediatric neurofibromatosis type 2: a cross sectional descriptive multicentric study
por: Legoupil, S., et al.
Publicado: (2022)

Inflammatory Vegetative Lesions of the Perineum: A Rare and Severe Clinical Presentation of Netherton Syndrome
por: ALBLUWI, Shatha, et al.
Publicado: (2020)

Segmental schwannomatosis: characteristics in 12 patients
por: Alaidarous, Abdulqader, et al.
Publicado: (2019)

Angiolymphoid hyperplasia with eosinophilia treated with low-dose methotrexate
por: Alaidarous, Abdulqader, et al.
Publicado: (2015)

Prognostic factors associated with upper gastrointestinal bleeding based on the French multicenter SANGHRIA trial
por: Quentin, Vincent, et al.
Publicado: (2021)

Herpes zoster in children during the COVID-19 pandemic in France: A retrospective multicenter observational study
por: Tabet, A., et al.
Publicado: (2023)

Primary lymphedema French National Diagnosis and Care Protocol (PNDS; Protocole National de Diagnostic et de Soins)
por: Vignes, Stéphane, et al.
Publicado: (2021)

Cutaneous Horn on Four-year-old Child’s Arm: A Quiz
por: POTTIER, Cassandre, et al.
Publicado: (2021)

Botulinum toxin injections as an effective treatment for patients with intertriginous Hailey-Hailey or Darier disease: an open-label 6-month pilot interventional study
por: Dreyfus, Isabelle, et al.
Publicado: (2021)

Chronic Ulceration of the Scalp Associated with Genetically Different Types of Congenital Ichthyosis: A Series of Four Cases
por: MAZEREEUW-HAUTIER, Juliette, et al.
Publicado: (2021)

Short-term Effect and Acceptability of Manual Lymphatic Drainage for Paediatric Limb Lymphoedema: A Prospective Study
por: EL HABNOUNI, Chakib, et al.
Publicado: (2020)

Identification of Mutations in SDR9C7 in Three Patients with Autosomal Recessive Congenital Ichthyosis
por: MAZEREEUW-HAUTIER, Juliette, et al.
Publicado: (2020)

TOPICOP©: A New Scale Evaluating Topical Corticosteroid Phobia among Atopic Dermatitis Outpatients and Their Parents
por: Moret, Leïla, et al.
Publicado: (2013)

What Is Speciation?
por: Shapiro, B. Jesse, et al.
Publicado: (2016)

Azathioprine Hypersensitivity Syndrome: Two Cases of Febrile Neutrophilic Dermatosis Induced by Azathioprine
por: Aleissa, Majed, et al.
Publicado: (2017)

Merkel Cell Polyomavirus Strains in Patients with Merkel Cell Carcinoma
por: Touzé, Antoine, et al.
Publicado: (2009)

Safety and efficacy of low-dose PI3K inhibitor taselisib in adult patients with CLOVES and Klippel–Trenaunay syndrome (KTS): the TOTEM trial, a phase 1/2 multicenter, open-label, single-arm study
por: Luu, M., et al.
Publicado: (2021)

Fatal Neonatal DOLK-CDG as a Rare Form of Syndromic Ichthyosis
por: Komlosi, Katalin, et al.
Publicado: (2021)

Comparative efficacy of fingolimod vs natalizumab: A French multicenter observational study
por: Barbin, Laetitia, et al.
Publicado: (2016)

Control of Low-Density Lipoprotein Cholesterol in Secondary Prevention of Coronary Artery Disease in Real-Life Practice: The DAUSSET Study in French Cardiologists
por: Ferrières, Jean, et al.
Publicado: (2021)

New developments in the molecular treatment of ichthyosis: review of the literature
por: Joosten, M. D. W., et al.
Publicado: (2022)

Harrap's French and English dictionary of data processing: English-French and French-English
por: Camille, Claude, et al.
Publicado: (1980)

Cannot write session to /tmp/vufind_sessions/sess_869bgddagal407csk1r6bo3fra