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A study to design minimum data set of COVID-19 registry system
BACKGROUND: From the beginning of the COVID-19 pandemic, the development of infrastructures to record, collect and report COVID-19 data has become a fundamental necessity in the world. The disease registry system can help build an infrastructure to collect data systematically. The study aimed to d...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8350262/ https://www.ncbi.nlm.nih.gov/pubmed/34372790 http://dx.doi.org/10.1186/s12879-021-06507-8 |
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author | Zarei, Javad Badavi, Mohammad Karandish, Majid Haddadzadeh Shoushtari, Maryam Dastoorpoor, Maryam Yousefi, Farid Raji, Hanieh Cheraghi, Maria |
author_facet | Zarei, Javad Badavi, Mohammad Karandish, Majid Haddadzadeh Shoushtari, Maryam Dastoorpoor, Maryam Yousefi, Farid Raji, Hanieh Cheraghi, Maria |
author_sort | Zarei, Javad |
collection | PubMed |
description | BACKGROUND: From the beginning of the COVID-19 pandemic, the development of infrastructures to record, collect and report COVID-19 data has become a fundamental necessity in the world. The disease registry system can help build an infrastructure to collect data systematically. The study aimed to design a minimum data set for the COVID-19 registry system. METHODS: A qualitative study to design an MDS for the COVID-19 registry system was performed in five phases at Ahvaz University of Medical Sciences in Khuzestan Province in southwestern Iran, 2020–2021. In the first phase, assessing the information requirements was performed for the COVID-19 registry system. Data elements were identified in the second phase. In the third phase, the MDS was selected, and in the four phases, the COVID-19 registry system was implemented as a pilot study to test the MDS. Finally, based on the experiences gained from the COVID-19 registry system implementation, the MDS were evaluated, and corrections were made. RESULTS: MDS of the COVID-19 registry system contains eight top groups including administrative (34 data elements), disease exposure (61 data elements), medical history and physical examination (138 data elements), findings of clinical diagnostic tests (101 data elements), disease progress and outcome of treatment (55 data elements), medical diagnosis and cause of death (12 data elements), follow-up (14 data elements), and COVID-19 vaccination (19 data elements) data, respectively. CONCLUSION: Creating a standard and comprehensive MDS can help to design any national data dictionary for COVID-19 and improve the quality of COVID-19 data. |
format | Online Article Text |
id | pubmed-8350262 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-83502622021-08-09 A study to design minimum data set of COVID-19 registry system Zarei, Javad Badavi, Mohammad Karandish, Majid Haddadzadeh Shoushtari, Maryam Dastoorpoor, Maryam Yousefi, Farid Raji, Hanieh Cheraghi, Maria BMC Infect Dis Research Article BACKGROUND: From the beginning of the COVID-19 pandemic, the development of infrastructures to record, collect and report COVID-19 data has become a fundamental necessity in the world. The disease registry system can help build an infrastructure to collect data systematically. The study aimed to design a minimum data set for the COVID-19 registry system. METHODS: A qualitative study to design an MDS for the COVID-19 registry system was performed in five phases at Ahvaz University of Medical Sciences in Khuzestan Province in southwestern Iran, 2020–2021. In the first phase, assessing the information requirements was performed for the COVID-19 registry system. Data elements were identified in the second phase. In the third phase, the MDS was selected, and in the four phases, the COVID-19 registry system was implemented as a pilot study to test the MDS. Finally, based on the experiences gained from the COVID-19 registry system implementation, the MDS were evaluated, and corrections were made. RESULTS: MDS of the COVID-19 registry system contains eight top groups including administrative (34 data elements), disease exposure (61 data elements), medical history and physical examination (138 data elements), findings of clinical diagnostic tests (101 data elements), disease progress and outcome of treatment (55 data elements), medical diagnosis and cause of death (12 data elements), follow-up (14 data elements), and COVID-19 vaccination (19 data elements) data, respectively. CONCLUSION: Creating a standard and comprehensive MDS can help to design any national data dictionary for COVID-19 and improve the quality of COVID-19 data. BioMed Central 2021-08-09 /pmc/articles/PMC8350262/ /pubmed/34372790 http://dx.doi.org/10.1186/s12879-021-06507-8 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Article Zarei, Javad Badavi, Mohammad Karandish, Majid Haddadzadeh Shoushtari, Maryam Dastoorpoor, Maryam Yousefi, Farid Raji, Hanieh Cheraghi, Maria A study to design minimum data set of COVID-19 registry system |
title | A study to design minimum data set of COVID-19 registry system |
title_full | A study to design minimum data set of COVID-19 registry system |
title_fullStr | A study to design minimum data set of COVID-19 registry system |
title_full_unstemmed | A study to design minimum data set of COVID-19 registry system |
title_short | A study to design minimum data set of COVID-19 registry system |
title_sort | study to design minimum data set of covid-19 registry system |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8350262/ https://www.ncbi.nlm.nih.gov/pubmed/34372790 http://dx.doi.org/10.1186/s12879-021-06507-8 |
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