A rare disease patient-reported outcome measure: revision and validation of the German version of the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) using the Rasch model

BACKGROUND: Rare disease patient-reported outcome measures (PROMs) require linguistic adaptation to overcome the challenge of geographically dispersed patient populations. Importantly, PROMs such as health-related quality of life (HRQoL) should accurately capture responses to patient-identified conc...

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Detalles Bibliográficos
Autores principales: Kocher, Agnes, Ndosi, Mwidimi, Denhaerynck, Kris, Simon, Michael, Dwyer, Andrew A., Distler, Oliver, Hoeper, Kirsten, Künzler-Heule, Patrizia, Redmond, Anthony C., Villiger, Peter M., Walker, Ulrich A., Nicca, Dunja
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8351336/
https://www.ncbi.nlm.nih.gov/pubmed/34372892
http://dx.doi.org/10.1186/s13023-021-01944-9

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