The GoodHope Ehlers Danlos Syndrome Clinic: development and implementation of the first interdisciplinary program for multi-system issues in connective tissue disorders at the Toronto General Hospital

Ehlers-Danlos Syndrome (EDS) are a heterogeneous group of genetic connective tissue disorders, and typically manifests as weak joints that subluxate/dislocate, stretchy and/or fragile skin, organ/systems dysfunction, and significant widespread pain. Historically, this syndrome has been poorly unders...

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Detalles Bibliográficos
Autores principales: Mittal, Nimish, Mina, Daniel Santa, McGillis, Laura, Weinrib, Aliza, Slepian, P. Maxwell, Rachinsky, Maxim, Buryk-Iggers, Stephanie, Laflamme, Camille, Lopez-Hernandez, Laura, Hussey, Laura, Katz, Joel, McLean, Lianne, Rozenberg, Dmitry, Liu, Louis, Tse, Yvonne, Parker, Colleen, Adler, Arnon, Charames, George, Bleakney, Robert, Veillette, Christian, Nielson, Christopher J., Tavares, Sandra, Varriano, Stephanie, Guzman, Juan, Faghfoury, Hanna, Clarke, Hance
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Position Statement
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8353438/
https://www.ncbi.nlm.nih.gov/pubmed/34376220
http://dx.doi.org/10.1186/s13023-021-01962-7

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