Cargando…
The social licence for data-intensive health research: towards co-creation, public value and trust
BACKGROUND: The rise of Big Data-driven health research challenges the assumed contribution of medical research to the public good, raising questions about whether the status of such research as a common good should be taken for granted, and how public trust can be preserved. Scandals arising out of...
Autores principales: | Muller, Sam H. A., Kalkman, Shona, van Thiel, Ghislaine J. M. W., Mostert, Menno, van Delden, Johannes J. M. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8353823/ https://www.ncbi.nlm.nih.gov/pubmed/34376204 http://dx.doi.org/10.1186/s12910-021-00677-5 |
Ejemplares similares
-
Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
por: Kalkman, Shona, et al.
Publicado: (2022) -
Patients’ and Publics’ Preferences for Data-Intensive Health Research Governance: Survey Study
por: Muller, Sam H A, et al.
Publicado: (2022) -
Responsible data sharing in international health research: a systematic review of principles and norms
por: Kalkman, Shona, et al.
Publicado: (2019) -
Dynamic consent, communication and return of results in large-scale health data reuse: Survey of public preferences
por: Muller, Sam HA, et al.
Publicado: (2023) -
The fiduciary obligation of the physician-researcher in phase IV trials
por: Bernabe, Rosemarie DLC, et al.
Publicado: (2014)