Cargando…
A study protocol for quantifying patient preferences in neuromuscular disorders: a case study of the IMI PREFER Project
Objectives: Patient preference studies are increasingly used to inform decision-making during the medical product lifecycle but are rarely used to inform early stages of drug development. The primary aim of this study is to quantify treatment preferences of patients with neuromuscular disorders, wh...
Autores principales: | Jimenez-Moreno, Aura Cecilia, Pinto, Cathy Anne, Levitan, Bennett, Whichello, Chiara, Dyer, Christine, Van Overbeeke, Eline, de Bekker-Grob, Esther, Smith, Ian, Huys, Isabelle, Viberg Johansson, Jennifer, Adcock, Kate, Bullock, Kristin, Soekhai, Vikas, Yuan, Zhong, Lochmuller, Hanns, de Wit, Ardine, Gorman, Grainne S. |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
F1000 Research Limited
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8356266/ https://www.ncbi.nlm.nih.gov/pubmed/34395923 http://dx.doi.org/10.12688/wellcomeopenres.16116.1 |
Ejemplares similares
-
Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study
por: Jimenez-Moreno, A. Cecilia, et al.
Publicado: (2021) -
Correction to: Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study
por: Jimenez-Moreno, A. Cecilia, et al.
Publicado: (2021) -
Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling: An Application to Neuromuscular Disease Treatment
por: Soekhai, Vikas, et al.
Publicado: (2023) -
Opportunities and challenges for the inclusion of patient preferences in the medical product life cycle: a systematic review
por: Janssens, Rosanne, et al.
Publicado: (2019) -
How can patient preferences be used and communicated in the regulatory evaluation of medicinal products? Findings and recommendations from IMI PREFER and call to action
por: Janssens, Rosanne, et al.
Publicado: (2023)