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Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment

BACKGROUND: In Saskatchewan, Canada, Indigenous cancer care services at the municipal, provincial, and federal levels are intended to improve quality care but can result in a complex, fragmented, and multi-jurisdictional health care system. A multi-phase needs assessment project was initiated to doc...

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Autores principales: Sedgewick, Jennifer R., Ali, Anum, Badea, Andreea, Carr, Tracey, Groot, Gary
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8380380/
https://www.ncbi.nlm.nih.gov/pubmed/34419035
http://dx.doi.org/10.1186/s12913-021-06821-6
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author Sedgewick, Jennifer R.
Ali, Anum
Badea, Andreea
Carr, Tracey
Groot, Gary
author_facet Sedgewick, Jennifer R.
Ali, Anum
Badea, Andreea
Carr, Tracey
Groot, Gary
author_sort Sedgewick, Jennifer R.
collection PubMed
description BACKGROUND: In Saskatchewan, Canada, Indigenous cancer care services at the municipal, provincial, and federal levels are intended to improve quality care but can result in a complex, fragmented, and multi-jurisdictional health care system. A multi-phase needs assessment project was initiated to document Indigenous cancer care needs. Guided by Indigenous patient partners, clinicians, academics, and policy makers, the present study reflects a needs assessment of Indigenous cancer supports from the perspectives of cancer care service providers. METHODS: Qualitative data were collected through three focus groups with 20 service providers for cancer patients and their families at three Saskatchewan cities. Participants included chemotherapy and radiation nurses, social workers, a patient navigator, dieticians, and practicum students. A semi-structured interview guide was used to conduct the sessions to allow for freedom of responses. Data were recorded, transcribed verbatim, and analyzed using thematic analysis. RESULTS: Service providers’ perspectives were categorized into five themes: 1) addressing travel-related issues, 2) logistical challenges, 3) improvements to Indigenous-specific health care supports, 4) cultural sensitivity in health care, and 5) consistency in care. Supports provided differed for the two Indigenous groups, First Nations and Métis. Service providers made recommendations regarding how needs could be met. They saw language translation providers and Elder supports as important. Recommendations for improving travel were for medical taxis to include breaks so that passengers may alleviate any uncomfortable side effects of their cancer treatment. Further, Indigenous-specific accommodations were recommended for those requiring medical travel. These recommendations aligned with supports that are available in four other Canadian provinces. CONCLUSIONS: These results identified gaps in supports and outlined recommendations to address barriers to cancer care from the perspectives of service providers. These recommendations may inform evidence-based health system interventions for Indigenous cancer patients and ultimately aim to improve cancer care services, quality of life, and health outcomes of Indigenous patients throughout their cancer journey. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12913-021-06821-6.
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spelling pubmed-83803802021-08-23 Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment Sedgewick, Jennifer R. Ali, Anum Badea, Andreea Carr, Tracey Groot, Gary BMC Health Serv Res Research Article BACKGROUND: In Saskatchewan, Canada, Indigenous cancer care services at the municipal, provincial, and federal levels are intended to improve quality care but can result in a complex, fragmented, and multi-jurisdictional health care system. A multi-phase needs assessment project was initiated to document Indigenous cancer care needs. Guided by Indigenous patient partners, clinicians, academics, and policy makers, the present study reflects a needs assessment of Indigenous cancer supports from the perspectives of cancer care service providers. METHODS: Qualitative data were collected through three focus groups with 20 service providers for cancer patients and their families at three Saskatchewan cities. Participants included chemotherapy and radiation nurses, social workers, a patient navigator, dieticians, and practicum students. A semi-structured interview guide was used to conduct the sessions to allow for freedom of responses. Data were recorded, transcribed verbatim, and analyzed using thematic analysis. RESULTS: Service providers’ perspectives were categorized into five themes: 1) addressing travel-related issues, 2) logistical challenges, 3) improvements to Indigenous-specific health care supports, 4) cultural sensitivity in health care, and 5) consistency in care. Supports provided differed for the two Indigenous groups, First Nations and Métis. Service providers made recommendations regarding how needs could be met. They saw language translation providers and Elder supports as important. Recommendations for improving travel were for medical taxis to include breaks so that passengers may alleviate any uncomfortable side effects of their cancer treatment. Further, Indigenous-specific accommodations were recommended for those requiring medical travel. These recommendations aligned with supports that are available in four other Canadian provinces. CONCLUSIONS: These results identified gaps in supports and outlined recommendations to address barriers to cancer care from the perspectives of service providers. These recommendations may inform evidence-based health system interventions for Indigenous cancer patients and ultimately aim to improve cancer care services, quality of life, and health outcomes of Indigenous patients throughout their cancer journey. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12913-021-06821-6. BioMed Central 2021-08-21 /pmc/articles/PMC8380380/ /pubmed/34419035 http://dx.doi.org/10.1186/s12913-021-06821-6 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Article
Sedgewick, Jennifer R.
Ali, Anum
Badea, Andreea
Carr, Tracey
Groot, Gary
Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title_full Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title_fullStr Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title_full_unstemmed Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title_short Service providers’ perceptions of support needs for Indigenous cancer patients in Saskatchewan: a needs assessment
title_sort service providers’ perceptions of support needs for indigenous cancer patients in saskatchewan: a needs assessment
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8380380/
https://www.ncbi.nlm.nih.gov/pubmed/34419035
http://dx.doi.org/10.1186/s12913-021-06821-6
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