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Overcoming Historical Barriers: Enhancing Positive Perceptions of Medical Research Among African Americans Through a Conference-Based Workshop

BACKGROUND: African Americans (AAs) and other racial/ethnic minority groups continue to be underrepresented in medical research and clinical trials. Failure to create more racially diverse research cohorts can exacerbate existing health disparities among these groups. OBJECTIVE: To investigate best...

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Autores principales: Brewer, LaPrincess C., Pasha, Maarya, Seele, Pernessa, Penheiter, Sumedha, White, Richard, Willis, Floyd, Albertie, Monica, Jenkins, Sarah M., Pullins, Christopher
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8390631/
https://www.ncbi.nlm.nih.gov/pubmed/34128196
http://dx.doi.org/10.1007/s11606-021-06736-2
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author Brewer, LaPrincess C.
Pasha, Maarya
Seele, Pernessa
Penheiter, Sumedha
White, Richard
Willis, Floyd
Albertie, Monica
Jenkins, Sarah M.
Pullins, Christopher
author_facet Brewer, LaPrincess C.
Pasha, Maarya
Seele, Pernessa
Penheiter, Sumedha
White, Richard
Willis, Floyd
Albertie, Monica
Jenkins, Sarah M.
Pullins, Christopher
author_sort Brewer, LaPrincess C.
collection PubMed
description BACKGROUND: African Americans (AAs) and other racial/ethnic minority groups continue to be underrepresented in medical research and clinical trials. Failure to create more racially diverse research cohorts can exacerbate existing health disparities among these groups. OBJECTIVE: To investigate best practices and strategies for enhancing participation of AAs in medical research among attendees of a preconference Institute at a faith-based public health conference. DESIGN: Qualitative study using semi-structured interviews. PARTICIPANTS: A total of 21 out of 29 attendees (90% AA) of the Institute (72% response rate). APPROACH: A culturally tailored preconference Institute was held at the 2017 Healthy Churches 2020 National Conference. The Institute was led by AA researchers focused on underrepresentation of AAs in medical research. Semi-structured interviews were conducted 1-year post-Institute (n=21) and were audio-recorded, transcribed verbatim, and reviewed using thematic analysis. KEY RESULTS: The majority of attendees reported that they were more likely to participate in medical research after attending the Institute (75%). Salient learning points reported by attendees demonstrated attainment of the Institute objectives. Key themes emerged describing barriers preventing AAs from participating in medical research including fear/lack of trust, lack of information on research projects, and not being approached to participate. Key themes regarding facilitators for participation in medical research by AAs were clear communication of study objectives and research benefits along with trust in researchers. CONCLUSIONS: Attendees’ perceptions of participation in medical research were largely positive following their attendance at a conference-based Institute aimed to address the underrepresentation of AAs in medical research. Our culturally tailored approach to disseminating knowledge of the research process could extend to other national conferences prioritizing AAs and other racial/ethnic minority populations to improve research participation. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s11606-021-06736-2.
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spelling pubmed-83906312021-09-16 Overcoming Historical Barriers: Enhancing Positive Perceptions of Medical Research Among African Americans Through a Conference-Based Workshop Brewer, LaPrincess C. Pasha, Maarya Seele, Pernessa Penheiter, Sumedha White, Richard Willis, Floyd Albertie, Monica Jenkins, Sarah M. Pullins, Christopher J Gen Intern Med Original Research BACKGROUND: African Americans (AAs) and other racial/ethnic minority groups continue to be underrepresented in medical research and clinical trials. Failure to create more racially diverse research cohorts can exacerbate existing health disparities among these groups. OBJECTIVE: To investigate best practices and strategies for enhancing participation of AAs in medical research among attendees of a preconference Institute at a faith-based public health conference. DESIGN: Qualitative study using semi-structured interviews. PARTICIPANTS: A total of 21 out of 29 attendees (90% AA) of the Institute (72% response rate). APPROACH: A culturally tailored preconference Institute was held at the 2017 Healthy Churches 2020 National Conference. The Institute was led by AA researchers focused on underrepresentation of AAs in medical research. Semi-structured interviews were conducted 1-year post-Institute (n=21) and were audio-recorded, transcribed verbatim, and reviewed using thematic analysis. KEY RESULTS: The majority of attendees reported that they were more likely to participate in medical research after attending the Institute (75%). Salient learning points reported by attendees demonstrated attainment of the Institute objectives. Key themes emerged describing barriers preventing AAs from participating in medical research including fear/lack of trust, lack of information on research projects, and not being approached to participate. Key themes regarding facilitators for participation in medical research by AAs were clear communication of study objectives and research benefits along with trust in researchers. CONCLUSIONS: Attendees’ perceptions of participation in medical research were largely positive following their attendance at a conference-based Institute aimed to address the underrepresentation of AAs in medical research. Our culturally tailored approach to disseminating knowledge of the research process could extend to other national conferences prioritizing AAs and other racial/ethnic minority populations to improve research participation. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s11606-021-06736-2. Springer International Publishing 2021-06-14 2021-09 /pmc/articles/PMC8390631/ /pubmed/34128196 http://dx.doi.org/10.1007/s11606-021-06736-2 Text en © The Authors 2021 https://creativecommons.org/licenses/by/4.0/Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Original Research
Brewer, LaPrincess C.
Pasha, Maarya
Seele, Pernessa
Penheiter, Sumedha
White, Richard
Willis, Floyd
Albertie, Monica
Jenkins, Sarah M.
Pullins, Christopher
Overcoming Historical Barriers: Enhancing Positive Perceptions of Medical Research Among African Americans Through a Conference-Based Workshop
title Overcoming Historical Barriers: Enhancing Positive Perceptions of Medical Research Among African Americans Through a Conference-Based Workshop
title_full Overcoming Historical Barriers: Enhancing Positive Perceptions of Medical Research Among African Americans Through a Conference-Based Workshop
title_fullStr Overcoming Historical Barriers: Enhancing Positive Perceptions of Medical Research Among African Americans Through a Conference-Based Workshop
title_full_unstemmed Overcoming Historical Barriers: Enhancing Positive Perceptions of Medical Research Among African Americans Through a Conference-Based Workshop
title_short Overcoming Historical Barriers: Enhancing Positive Perceptions of Medical Research Among African Americans Through a Conference-Based Workshop
title_sort overcoming historical barriers: enhancing positive perceptions of medical research among african americans through a conference-based workshop
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8390631/
https://www.ncbi.nlm.nih.gov/pubmed/34128196
http://dx.doi.org/10.1007/s11606-021-06736-2
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