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Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies
To understand the perspectives and needs of autistic children and their families in the context of an emergency, 109 parents and 56 autistic children (5.75–18 years) from Canada completed an online survey about needs, barriers and facilitators to coping with the pandemic. Parents’ concerns about the...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer US
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8391854/ https://www.ncbi.nlm.nih.gov/pubmed/34448994 http://dx.doi.org/10.1007/s10803-021-05233-z |
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author | Jacques, Claudine Saulnier, Geneviève Éthier, Agnès Soulières, Isabelle |
author_facet | Jacques, Claudine Saulnier, Geneviève Éthier, Agnès Soulières, Isabelle |
author_sort | Jacques, Claudine |
collection | PubMed |
description | To understand the perspectives and needs of autistic children and their families in the context of an emergency, 109 parents and 56 autistic children (5.75–18 years) from Canada completed an online survey about needs, barriers and facilitators to coping with the pandemic. Parents’ concerns about their child’s development and difficulties managing their child’s behaviors before and during pandemic were significantly associated. Parents identified maintaining social relationships and implementing appropriate interventions to their child’s characteristics as facilitators during the pandemic. Both children and parents identified lack of socialization as a main difficulty. Among children, 92.9% associated electronic devices with their well-being. This study highlighted the need to consider the child’s autistic characteristics and interests to implement emergency accommodations and services. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s10803-021-05233-z. |
format | Online Article Text |
id | pubmed-8391854 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Springer US |
record_format | MEDLINE/PubMed |
spelling | pubmed-83918542021-08-27 Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies Jacques, Claudine Saulnier, Geneviève Éthier, Agnès Soulières, Isabelle J Autism Dev Disord Original Paper To understand the perspectives and needs of autistic children and their families in the context of an emergency, 109 parents and 56 autistic children (5.75–18 years) from Canada completed an online survey about needs, barriers and facilitators to coping with the pandemic. Parents’ concerns about their child’s development and difficulties managing their child’s behaviors before and during pandemic were significantly associated. Parents identified maintaining social relationships and implementing appropriate interventions to their child’s characteristics as facilitators during the pandemic. Both children and parents identified lack of socialization as a main difficulty. Among children, 92.9% associated electronic devices with their well-being. This study highlighted the need to consider the child’s autistic characteristics and interests to implement emergency accommodations and services. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s10803-021-05233-z. Springer US 2021-08-27 2022 /pmc/articles/PMC8391854/ /pubmed/34448994 http://dx.doi.org/10.1007/s10803-021-05233-z Text en © Crown 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . |
spellingShingle | Original Paper Jacques, Claudine Saulnier, Geneviève Éthier, Agnès Soulières, Isabelle Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies |
title | Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies |
title_full | Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies |
title_fullStr | Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies |
title_full_unstemmed | Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies |
title_short | Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies |
title_sort | experience of autistic children and their families during the pandemic: from distress to coping strategies |
topic | Original Paper |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8391854/ https://www.ncbi.nlm.nih.gov/pubmed/34448994 http://dx.doi.org/10.1007/s10803-021-05233-z |
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