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Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives’ Perception

Insomnia is one of the most frequent symptoms and usually generates significant stress in 60% of patients with advanced cancer. Worries from the patients’ and relatives’ perspective are crucial to improve the patients’ quality of life but have received limited attention. The aims were to identify th...

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Detalles Bibliográficos
Autores principales: Guiteras, Antoni Font, Abelló, Helena Villar, Domingo, José Planas, Danés, Cristina Farriols, Ripoll, Ada Ruiz, Berger, Rita
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8392089/
https://www.ncbi.nlm.nih.gov/pubmed/34444258
http://dx.doi.org/10.3390/ijerph18168509
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author Guiteras, Antoni Font
Abelló, Helena Villar
Domingo, José Planas
Danés, Cristina Farriols
Ripoll, Ada Ruiz
Berger, Rita
author_facet Guiteras, Antoni Font
Abelló, Helena Villar
Domingo, José Planas
Danés, Cristina Farriols
Ripoll, Ada Ruiz
Berger, Rita
author_sort Guiteras, Antoni Font
collection PubMed
description Insomnia is one of the most frequent symptoms and usually generates significant stress in 60% of patients with advanced cancer. Worries from the patients’ and relatives’ perspective are crucial to improve the patients’ quality of life but have received limited attention. The aims were to identify the concerns of patients with insomnia in the terminal illness stage in a palliative care unit and the relatives’ perception, and to compare both. Here, 63 patients and 53 relatives answered a questionnaire about worries in the personal, spiritual, family-related and economic area, as well as a quality-of-life uniscale. The results showed that the relatives’ most frequent concern was “Having lived life to the fullest” (100%), and the most intense was “The possible suffering during the process” (9.2/10). The patients’ most expressed concern was: “Having unfinished business” (100%), and the most intense was “Suffering during the process” (9.3/10). Quality of life showed an average value of 6.95 out of 10. Relatives only coincided significantly in: “Not knowing what happens after death” (r = 0.600; p = 0.000). These results bring visibility to concerns during the final stage of oncological palliative patients with insomnia from the patients’ and relatives’ perspective. Knowing both is useful for professionals to foster the well-being for a short, yet very important, period for patients, relatives and the caregiving team.
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spelling pubmed-83920892021-08-28 Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives’ Perception Guiteras, Antoni Font Abelló, Helena Villar Domingo, José Planas Danés, Cristina Farriols Ripoll, Ada Ruiz Berger, Rita Int J Environ Res Public Health Article Insomnia is one of the most frequent symptoms and usually generates significant stress in 60% of patients with advanced cancer. Worries from the patients’ and relatives’ perspective are crucial to improve the patients’ quality of life but have received limited attention. The aims were to identify the concerns of patients with insomnia in the terminal illness stage in a palliative care unit and the relatives’ perception, and to compare both. Here, 63 patients and 53 relatives answered a questionnaire about worries in the personal, spiritual, family-related and economic area, as well as a quality-of-life uniscale. The results showed that the relatives’ most frequent concern was “Having lived life to the fullest” (100%), and the most intense was “The possible suffering during the process” (9.2/10). The patients’ most expressed concern was: “Having unfinished business” (100%), and the most intense was “Suffering during the process” (9.3/10). Quality of life showed an average value of 6.95 out of 10. Relatives only coincided significantly in: “Not knowing what happens after death” (r = 0.600; p = 0.000). These results bring visibility to concerns during the final stage of oncological palliative patients with insomnia from the patients’ and relatives’ perspective. Knowing both is useful for professionals to foster the well-being for a short, yet very important, period for patients, relatives and the caregiving team. MDPI 2021-08-12 /pmc/articles/PMC8392089/ /pubmed/34444258 http://dx.doi.org/10.3390/ijerph18168509 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Guiteras, Antoni Font
Abelló, Helena Villar
Domingo, José Planas
Danés, Cristina Farriols
Ripoll, Ada Ruiz
Berger, Rita
Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives’ Perception
title Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives’ Perception
title_full Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives’ Perception
title_fullStr Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives’ Perception
title_full_unstemmed Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives’ Perception
title_short Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives’ Perception
title_sort palliative oncological patients with insomnia: concerns of the patients and their relatives’ perception
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8392089/
https://www.ncbi.nlm.nih.gov/pubmed/34444258
http://dx.doi.org/10.3390/ijerph18168509
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