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An ID-Associated Application to Facilitate Patient-Tailored Management of Multiple Sclerosis

Despite improvements in diagnosis and treatment, multiple sclerosis (MS) is the leading neurological cause of disability in young adults. As a chronic disease, MS requires complex and challenging management. In this context, eHealth has gained an increasing relevance. Here, we aim to summarize benef...

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Autores principales: Lang, Michael, Rau, Daniela, Cepek, Lukas, Cürten, Fia, Ringbauer, Stefan, Mayr, Martin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8392440/
https://www.ncbi.nlm.nih.gov/pubmed/34439680
http://dx.doi.org/10.3390/brainsci11081061
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author Lang, Michael
Rau, Daniela
Cepek, Lukas
Cürten, Fia
Ringbauer, Stefan
Mayr, Martin
author_facet Lang, Michael
Rau, Daniela
Cepek, Lukas
Cürten, Fia
Ringbauer, Stefan
Mayr, Martin
author_sort Lang, Michael
collection PubMed
description Despite improvements in diagnosis and treatment, multiple sclerosis (MS) is the leading neurological cause of disability in young adults. As a chronic disease, MS requires complex and challenging management. In this context, eHealth has gained an increasing relevance. Here, we aim to summarize beneficial features of a mobile app recently implemented in clinical MS routine as well as beyond MS. PatientConcept is a CE-certified, ID-associated multilingual software application allowing patients to record relevant health data without disclosing any identifying data. Patients can voluntarily share their health data with selected physicians. Since its implementation in 2018, about 3000 MS patients have used PatientConcept. Initially developed as a physician–patient communication platform, the app maps risk management plans of all current disease modifying therapies and thereby facilitates adherence to specified monitoring appointments. It also allows continuous monitoring of various PROs (Patient Reported Outcomes), enabling a broad overview of the disease course. In addition, various studies/projects currently assess monitoring, follow-up, diagnostics and telemetric evaluations of patients with other diseases beyond MS. Altogether, PatientConcept offers a broad range of possibilities to support physician–patient communication, implementation of risk management plans and assessment of PROs. It is a promising tool to facilitate patient-tailored management of MS and other chronic diseases.
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spelling pubmed-83924402021-08-28 An ID-Associated Application to Facilitate Patient-Tailored Management of Multiple Sclerosis Lang, Michael Rau, Daniela Cepek, Lukas Cürten, Fia Ringbauer, Stefan Mayr, Martin Brain Sci Communication Despite improvements in diagnosis and treatment, multiple sclerosis (MS) is the leading neurological cause of disability in young adults. As a chronic disease, MS requires complex and challenging management. In this context, eHealth has gained an increasing relevance. Here, we aim to summarize beneficial features of a mobile app recently implemented in clinical MS routine as well as beyond MS. PatientConcept is a CE-certified, ID-associated multilingual software application allowing patients to record relevant health data without disclosing any identifying data. Patients can voluntarily share their health data with selected physicians. Since its implementation in 2018, about 3000 MS patients have used PatientConcept. Initially developed as a physician–patient communication platform, the app maps risk management plans of all current disease modifying therapies and thereby facilitates adherence to specified monitoring appointments. It also allows continuous monitoring of various PROs (Patient Reported Outcomes), enabling a broad overview of the disease course. In addition, various studies/projects currently assess monitoring, follow-up, diagnostics and telemetric evaluations of patients with other diseases beyond MS. Altogether, PatientConcept offers a broad range of possibilities to support physician–patient communication, implementation of risk management plans and assessment of PROs. It is a promising tool to facilitate patient-tailored management of MS and other chronic diseases. MDPI 2021-08-12 /pmc/articles/PMC8392440/ /pubmed/34439680 http://dx.doi.org/10.3390/brainsci11081061 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Communication
Lang, Michael
Rau, Daniela
Cepek, Lukas
Cürten, Fia
Ringbauer, Stefan
Mayr, Martin
An ID-Associated Application to Facilitate Patient-Tailored Management of Multiple Sclerosis
title An ID-Associated Application to Facilitate Patient-Tailored Management of Multiple Sclerosis
title_full An ID-Associated Application to Facilitate Patient-Tailored Management of Multiple Sclerosis
title_fullStr An ID-Associated Application to Facilitate Patient-Tailored Management of Multiple Sclerosis
title_full_unstemmed An ID-Associated Application to Facilitate Patient-Tailored Management of Multiple Sclerosis
title_short An ID-Associated Application to Facilitate Patient-Tailored Management of Multiple Sclerosis
title_sort id-associated application to facilitate patient-tailored management of multiple sclerosis
topic Communication
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8392440/
https://www.ncbi.nlm.nih.gov/pubmed/34439680
http://dx.doi.org/10.3390/brainsci11081061
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