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Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care

This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group...

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Detalles Bibliográficos
Autores principales: Tranberg, Mattias, Andersson, Magdalena, Nilbert, Mef, Rasmussen, Birgit H
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8392770/
https://www.ncbi.nlm.nih.gov/pubmed/31778077
http://dx.doi.org/10.1177/1359105319890407
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author Tranberg, Mattias
Andersson, Magdalena
Nilbert, Mef
Rasmussen, Birgit H
author_facet Tranberg, Mattias
Andersson, Magdalena
Nilbert, Mef
Rasmussen, Birgit H
author_sort Tranberg, Mattias
collection PubMed
description This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group interviews. Three themes were identified: setting aside one’s own needs, assuming the role of project manager, and losing one’s sense of identity. Together they form the framing theme: being co-afflicted. The characteristics of informal caregivers are shown to be similar to those of people with codependency, motivating development of targeted interventions from this perspective.
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spelling pubmed-83927702021-08-28 Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care Tranberg, Mattias Andersson, Magdalena Nilbert, Mef Rasmussen, Birgit H J Health Psychol Articles This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group interviews. Three themes were identified: setting aside one’s own needs, assuming the role of project manager, and losing one’s sense of identity. Together they form the framing theme: being co-afflicted. The characteristics of informal caregivers are shown to be similar to those of people with codependency, motivating development of targeted interventions from this perspective. SAGE Publications 2019-11-28 2021-09 /pmc/articles/PMC8392770/ /pubmed/31778077 http://dx.doi.org/10.1177/1359105319890407 Text en © The Author(s) 2019 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) ) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Articles
Tranberg, Mattias
Andersson, Magdalena
Nilbert, Mef
Rasmussen, Birgit H
Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care
title Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care
title_full Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care
title_fullStr Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care
title_full_unstemmed Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care
title_short Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care
title_sort co-afflicted but invisible: a qualitative study of perceptions among informal caregivers in cancer care
topic Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8392770/
https://www.ncbi.nlm.nih.gov/pubmed/31778077
http://dx.doi.org/10.1177/1359105319890407
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