Cargando…

Family-Centered Care at Pediatric Cardiac Intensive Care Units in Germany and the Relationship With Parent and Infant Well-Being: A Study Protocol

Rationale and Aim: Infants with Congenital Heart Disease (CHD) are at risk for neurodevelopmental delays, emotional, social and behavioral difficulties. Hospitalization early in life and associated stressors may contribute to these challenges. Family-centered Care (FCC) is a health care approach tha...

Descripción completa

Detalles Bibliográficos
Autores principales:	Ferentzi, Hannah, Rippe, Ralph C. A., Latour, Jos M., Schubert, Stephan, Girch, Alona, Jönebratt Stocker, Michaela, Pfitzer, Constanze, Photiadis, Joachim, Sandica, Eugen, Berger, Felix, Schmitt, Katharina R. L.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Frontiers Media S.A. 2021
Materias:	Pediatrics
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8397409/ https://www.ncbi.nlm.nih.gov/pubmed/34458208 http://dx.doi.org/10.3389/fped.2021.666904

Ejemplares similares

The German EMPATHIC-30 Questionnaire Showed Reliability and Convergent Validity for Use in an Intermediary/General Pediatric Cardiology Unit: A Psychometric Evaluation
por: Girch, Alona, et al.
Publicado: (2022)

Long-term early development research in congenital heart disease (LEADER-CHD): a study protocol for a prospective cohort observational study investigating the development of children after surgical correction for congenital heart defects during the first 3 years of life
por: Ferentzi, Hannah, et al.
Publicado: (2017)

Being the Father of a Preterm-Born Child: Contemporary Research and Recommendations for NICU Staff
por: Baldoni, Franco, et al.
Publicado: (2021)

Turkish Adaptation and Validation of the EMpowerment of PArents in THe Intensive Care (EMPATHIC-30) Questionnaire to Measure Parent Satisfaction in Neonatal Intensive Care Units
por: Tiryaki, Öznur, et al.
Publicado: (2020)

Validation of the Chinese Empowerment of Parents in the Intensive Care (EMPATHIC-30) Questionnaire Among Parents in Neonatal Intensive Care Units: A Prospective Cross-Sectional Study
por: Zhuang, Yan, et al.
Publicado: (2022)

Implementing a psychosocial care approach in pediatric inpatient care: process evaluation of the pilot Child Life Specialist program at the University Hospital of Munich, Germany
por: Hummel, Julia, et al.
Publicado: (2023)

End-of-life decisions and practices as viewed by health professionals in pediatric critical care: A European survey study
por: Zanin, Anna, et al.
Publicado: (2023)

Needs Assessment in Care of Adults With Anorectal Malformations and Exstrophy-Epispadias Complex in Germany
por: Ebert, Anne Karoline, et al.
Publicado: (2018)

Family-Centered Care Improves Clinical Outcomes of Very-Low-Birth-Weight Infants: A Quasi-Experimental Study
por: Lv, Bo, et al.
Publicado: (2019)

Pediatricians’ experiences of managing outpatient care during the COVID-19 pandemic: A qualitative study in Germany
por: von Sommoggy, Julia, et al.
Publicado: (2023)

Testing a Family Supportive End of Life Care Intervention in a Chinese Neonatal Intensive Care Unit: A Quasi-experimental Study With a Non-randomized Controlled Trial Design
por: Zhang, Rong, et al.
Publicado: (2022)

Culture-Negative Early-Onset Neonatal Sepsis — At the Crossroad Between Efficient Sepsis Care and Antimicrobial Stewardship
por: Klingenberg, Claus, et al.
Publicado: (2018)

Prehospital emergency medicine for children receiving palliative home care in Germany—a cross-sectional, exploratory study of EMS providers
por: Hauch, Holger, et al.
Publicado: (2023)

Therapeutic hypothermia for encephalopathic newborns with congenital heart defect: A cross-sectional survey on current practices and opinions in Germany
por: Boos, Vinzenz, et al.
Publicado: (2022)

Impact of Empowering Leadership on Antimicrobial Stewardship: A Single Center Study in a Neonatal and Pediatric Intensive Care Unit and a Literature Review
por: Steinmann, Karin E., et al.
Publicado: (2018)

The Role of Parental Concerns in the Recognition of Sepsis in Children: A Literature Review
por: Harley, Amanda, et al.
Publicado: (2019)

Echocardiography parameters used in identifying right ventricle dysfunction in preterm infants with early bronchopulmonary dysplasia: A scoping review
por: Muhsen, Wisam, et al.
Publicado: (2023)

Commentary: Fontan circulation with lymphatic failure: Was the Holy Grail finally found?
por: Sandica, Eugen
Publicado: (2021)

Italian and Swedish adolescents: differences and associations in subjective well-being and psychological well-being
por: Garcia, Danilo, et al.
Publicado: (2017)

Targeted Training for Subspecialist Care in Children With Medical Complexity
por: Eibensteiner, Fabian, et al.
Publicado: (2022)

Parent Satisfaction With Care and Treatment Relates to Missed Nursing Care in Neonatal Intensive Care Units
por: Lake, Eileen T., et al.
Publicado: (2020)

Point-of-Care Ultrasound in the Pediatric Intensive Care Unit
por: Burton, Luke, et al.
Publicado: (2022)

Virtual Care Across the Neonatal Intensive Care Continuum
por: Desai, Purnahamsi, et al.
Publicado: (2023)

Palliative Care and Grief Counseling in Peri- and Neonatology: Recommendations From the German PaluTiN Group
por: Garten, Lars, et al.
Publicado: (2020)

Perinatal Palliative Care Birth Planning as Advance Care Planning
por: Cortezzo, DonnaMaria E., et al.
Publicado: (2020)

Palliative and Critical Care: Their Convergence in the Pediatric Intensive Care Unit
por: Buang, Siti Nur Hanim, et al.
Publicado: (2022)

Blood Component Transfusion in Tertiary Care Neonatal Intensive Care Unit and Neonatal Intermediate Care Unit: An Audit
por: Amrutiya, Rahulkumar J, et al.
Publicado: (2020)

Gastrointestinal Symptoms in Children With Life-Limiting Conditions Receiving Palliative Home Care
por: Hauch, Holger, et al.
Publicado: (2021)

SARS-CoV-2 in Pediatric Inpatient Care: Management, Clinical Presentation and Utilization of Healthcare Capacity
por: Busch, Christine, et al.
Publicado: (2021)

Construction and psychometric testing of the EMPATHIC questionnaire measuring parent satisfaction in the pediatric intensive care unit
por: Latour, Jos M., et al.
Publicado: (2010)

A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units
por: Latour, Jos M., et al.
Publicado: (2010)

A Survey on Cannabinoid Treatment of Pediatric Epilepsy Among Neuropediatricians in Scandinavia and Germany
por: Klingenberg, Claus, et al.
Publicado: (2020)

A Review of the Integrated Model of Care: An Opportunity to Respond to Extensive Palliative Care Needs in Pediatric Intensive Care Units in Under-Resourced Settings
por: Grunauer, Michelle, et al.
Publicado: (2018)

Factors Influencing Implementation of Family-Centered Care in a Neonatal Intensive Care Unit
por: Oude Maatman, Sabine M., et al.
Publicado: (2020)

Commentary: Factors Influencing Implementation of Family-Centered Care in Neonatal Intensive Care Units
por: Cruz, Andréia Cascaes, et al.
Publicado: (2021)

Clinician perception of care at the end of life in a quaternary neonatal intensive care unit
por: Imai, Lauren, et al.
Publicado: (2023)

Video recording emergency care and video-reflection to improve patient care; a narrative review and case-study of a neonatal intensive care unit
por: Heesters, Veerle, et al.
Publicado: (2022)

Improving Neonatal Care with Technology
por: te Pas, Arjan B.
Publicado: (2017)

Measuring Parent Satisfaction With Care in Neonatal Intensive Care Units: The EMPATHIC-NICU-USA Questionnaire
por: Lake, Eileen T., et al.
Publicado: (2020)

Standards of Care for Children in Emergency Departments: International Federation of Emergency Medicine Agenda for the Care of Children
por: Gutierrez, Camilo E., et al.
Publicado: (2020)

Cannot write session to /tmp/vufind_sessions/sess_2dg45kqdk8ps57ql76r6nues5u