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International Latin American Survey on Pediatric Intestinal Failure Team

There is little data on the experience of managing pediatric Intestinal Failure (IF) in Latin America. This study aimed to identify and describe the current organization and practices of the IF teams in Latin America and the Caribbean. An online survey was sent to inquire about the existence of IF t...

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Autores principales: Spolidoro, José Vicente N., Souza, Mirella C., Goldani, Helena A. S., Tanzi, María N., Busoni, Veronica B., Padilla, Maria del Carmen, Ramirez, Nelson E., Cofre, Colomba, Valdivieso, Lidia P., Saure, Carola, Jimenez-Arguedas, Gabriela, Mateus, Mikaelle S. M., Serra, Roberta, Cuadros-Mendonza, Carlos, Rivera-Medina, Juan, Gattini, Daniela, dos Santos, Beatriz J., Plata, Clara, Sandy, Natascha Silva
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8399331/
https://www.ncbi.nlm.nih.gov/pubmed/34444914
http://dx.doi.org/10.3390/nu13082754
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author Spolidoro, José Vicente N.
Souza, Mirella C.
Goldani, Helena A. S.
Tanzi, María N.
Busoni, Veronica B.
Padilla, Maria del Carmen
Ramirez, Nelson E.
Cofre, Colomba
Valdivieso, Lidia P.
Saure, Carola
Jimenez-Arguedas, Gabriela
Mateus, Mikaelle S. M.
Serra, Roberta
Cuadros-Mendonza, Carlos
Rivera-Medina, Juan
Gattini, Daniela
dos Santos, Beatriz J.
Plata, Clara
Sandy, Natascha Silva
author_facet Spolidoro, José Vicente N.
Souza, Mirella C.
Goldani, Helena A. S.
Tanzi, María N.
Busoni, Veronica B.
Padilla, Maria del Carmen
Ramirez, Nelson E.
Cofre, Colomba
Valdivieso, Lidia P.
Saure, Carola
Jimenez-Arguedas, Gabriela
Mateus, Mikaelle S. M.
Serra, Roberta
Cuadros-Mendonza, Carlos
Rivera-Medina, Juan
Gattini, Daniela
dos Santos, Beatriz J.
Plata, Clara
Sandy, Natascha Silva
author_sort Spolidoro, José Vicente N.
collection PubMed
description There is little data on the experience of managing pediatric Intestinal Failure (IF) in Latin America. This study aimed to identify and describe the current organization and practices of the IF teams in Latin America and the Caribbean. An online survey was sent to inquire about the existence of IF teams that managed children on home parenteral nutrition (HPN). Our questionnaire was based on a previously published European study with a similar goal. Twenty-four centers with pediatric IF teams in eight countries completed the survey, representing a total number of 316 children on HPN. The median number of children on parenteral nutrition (PN) at home per team was 5.5 (range 1–50). Teams consisted of the following members: pediatric gastroenterologist and a pediatric surgeon in all teams, dietician (95.8%), nurse (91.7%), social worker (79.2%), pharmacist (70.8%), oral therapist (62.5%), psychologist (58.3%), and physiotherapist (45.8%). The majority of the centers followed international standards of care on vascular access, parenteral and enteral nutrition, and IF medical and surgical management, but a significant percentage reported inability to monitor micronutrients, like vitamins A (37.5%), E (41.7%), B1 (66.7%), B2 (62.5%), B6 (62.5%), active B12 (58.3%); and trace elements—including zinc (29.2%), aluminum (75%), copper (37.5%), chromium (58.3%), selenium (58.3%), and manganese (58.3%). Conclusion: There is wide variation in how IF teams are structured in Latin America—while many countries have well-established Intestinal rehabilitation programs, a few do not follow international standards. Many countries did not report having an IF team managing pediatric patients on HPN.
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spelling pubmed-83993312021-08-29 International Latin American Survey on Pediatric Intestinal Failure Team Spolidoro, José Vicente N. Souza, Mirella C. Goldani, Helena A. S. Tanzi, María N. Busoni, Veronica B. Padilla, Maria del Carmen Ramirez, Nelson E. Cofre, Colomba Valdivieso, Lidia P. Saure, Carola Jimenez-Arguedas, Gabriela Mateus, Mikaelle S. M. Serra, Roberta Cuadros-Mendonza, Carlos Rivera-Medina, Juan Gattini, Daniela dos Santos, Beatriz J. Plata, Clara Sandy, Natascha Silva Nutrients Article There is little data on the experience of managing pediatric Intestinal Failure (IF) in Latin America. This study aimed to identify and describe the current organization and practices of the IF teams in Latin America and the Caribbean. An online survey was sent to inquire about the existence of IF teams that managed children on home parenteral nutrition (HPN). Our questionnaire was based on a previously published European study with a similar goal. Twenty-four centers with pediatric IF teams in eight countries completed the survey, representing a total number of 316 children on HPN. The median number of children on parenteral nutrition (PN) at home per team was 5.5 (range 1–50). Teams consisted of the following members: pediatric gastroenterologist and a pediatric surgeon in all teams, dietician (95.8%), nurse (91.7%), social worker (79.2%), pharmacist (70.8%), oral therapist (62.5%), psychologist (58.3%), and physiotherapist (45.8%). The majority of the centers followed international standards of care on vascular access, parenteral and enteral nutrition, and IF medical and surgical management, but a significant percentage reported inability to monitor micronutrients, like vitamins A (37.5%), E (41.7%), B1 (66.7%), B2 (62.5%), B6 (62.5%), active B12 (58.3%); and trace elements—including zinc (29.2%), aluminum (75%), copper (37.5%), chromium (58.3%), selenium (58.3%), and manganese (58.3%). Conclusion: There is wide variation in how IF teams are structured in Latin America—while many countries have well-established Intestinal rehabilitation programs, a few do not follow international standards. Many countries did not report having an IF team managing pediatric patients on HPN. MDPI 2021-08-11 /pmc/articles/PMC8399331/ /pubmed/34444914 http://dx.doi.org/10.3390/nu13082754 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Spolidoro, José Vicente N.
Souza, Mirella C.
Goldani, Helena A. S.
Tanzi, María N.
Busoni, Veronica B.
Padilla, Maria del Carmen
Ramirez, Nelson E.
Cofre, Colomba
Valdivieso, Lidia P.
Saure, Carola
Jimenez-Arguedas, Gabriela
Mateus, Mikaelle S. M.
Serra, Roberta
Cuadros-Mendonza, Carlos
Rivera-Medina, Juan
Gattini, Daniela
dos Santos, Beatriz J.
Plata, Clara
Sandy, Natascha Silva
International Latin American Survey on Pediatric Intestinal Failure Team
title International Latin American Survey on Pediatric Intestinal Failure Team
title_full International Latin American Survey on Pediatric Intestinal Failure Team
title_fullStr International Latin American Survey on Pediatric Intestinal Failure Team
title_full_unstemmed International Latin American Survey on Pediatric Intestinal Failure Team
title_short International Latin American Survey on Pediatric Intestinal Failure Team
title_sort international latin american survey on pediatric intestinal failure team
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8399331/
https://www.ncbi.nlm.nih.gov/pubmed/34444914
http://dx.doi.org/10.3390/nu13082754
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