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Research interrupted: The impact of the COVID-19 pandemic on multiple sclerosis research in the field of rehabilitation and quality of life

BACKGROUND: The COVID-19 pandemic has likely had a negative impact on rehabilitation and quality of life (QoL) research in multiple sclerosis (MS). METHOD: We explored perceived barriers to research among 87 researchers, representing 18 countries, both prior to and since COVID-19. RESULTS: A Wilcoxo...

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Autores principales: Maguire, Rebecca, Hynes, Sinead, Seebacher, Barbara, Block, Valerie J, Zackowski, Kathy M, Jonsdottir, Johanna, Finlayson, Marcia, Plummer, Prue, Freeman, Jennifer, Giesser, Barbara, von Geldern, Gloria, Ploughman, Michelle
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8404642/
https://www.ncbi.nlm.nih.gov/pubmed/34471543
http://dx.doi.org/10.1177/20552173211038030
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author Maguire, Rebecca
Hynes, Sinead
Seebacher, Barbara
Block, Valerie J
Zackowski, Kathy M
Jonsdottir, Johanna
Finlayson, Marcia
Plummer, Prue
Freeman, Jennifer
Giesser, Barbara
von Geldern, Gloria
Ploughman, Michelle
author_facet Maguire, Rebecca
Hynes, Sinead
Seebacher, Barbara
Block, Valerie J
Zackowski, Kathy M
Jonsdottir, Johanna
Finlayson, Marcia
Plummer, Prue
Freeman, Jennifer
Giesser, Barbara
von Geldern, Gloria
Ploughman, Michelle
author_sort Maguire, Rebecca
collection PubMed
description BACKGROUND: The COVID-19 pandemic has likely had a negative impact on rehabilitation and quality of life (QoL) research in multiple sclerosis (MS). METHOD: We explored perceived barriers to research among 87 researchers, representing 18 countries, both prior to and since COVID-19. RESULTS: A Wilcoxon signed-rank test found that significantly more researchers reported experiencing barriers to research since the onset of the pandemic compared to pre-COVID-19 (p < .001), with 78% of respondents reporting at least some barriers since COVID-19. The most commonly-cited barriers related to participant access (n = 38) and interruptions/delays to projects (n = 19). Although no gender differences were found in the number of barriers reported, female respondents were more likely to cite time or competing demands as barriers to research. Females were also more likely to perceive being negatively impacted by the pandemic compared to other genders (p = .007). CONCLUSIONS: Implications for the future landscape of rehabilitation research in MS are discussed.
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spelling pubmed-84046422021-08-31 Research interrupted: The impact of the COVID-19 pandemic on multiple sclerosis research in the field of rehabilitation and quality of life Maguire, Rebecca Hynes, Sinead Seebacher, Barbara Block, Valerie J Zackowski, Kathy M Jonsdottir, Johanna Finlayson, Marcia Plummer, Prue Freeman, Jennifer Giesser, Barbara von Geldern, Gloria Ploughman, Michelle Mult Scler J Exp Transl Clin Brief Report BACKGROUND: The COVID-19 pandemic has likely had a negative impact on rehabilitation and quality of life (QoL) research in multiple sclerosis (MS). METHOD: We explored perceived barriers to research among 87 researchers, representing 18 countries, both prior to and since COVID-19. RESULTS: A Wilcoxon signed-rank test found that significantly more researchers reported experiencing barriers to research since the onset of the pandemic compared to pre-COVID-19 (p < .001), with 78% of respondents reporting at least some barriers since COVID-19. The most commonly-cited barriers related to participant access (n = 38) and interruptions/delays to projects (n = 19). Although no gender differences were found in the number of barriers reported, female respondents were more likely to cite time or competing demands as barriers to research. Females were also more likely to perceive being negatively impacted by the pandemic compared to other genders (p = .007). CONCLUSIONS: Implications for the future landscape of rehabilitation research in MS are discussed. SAGE Publications 2021-08-26 /pmc/articles/PMC8404642/ /pubmed/34471543 http://dx.doi.org/10.1177/20552173211038030 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Creative Commons CC BY: This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Brief Report
Maguire, Rebecca
Hynes, Sinead
Seebacher, Barbara
Block, Valerie J
Zackowski, Kathy M
Jonsdottir, Johanna
Finlayson, Marcia
Plummer, Prue
Freeman, Jennifer
Giesser, Barbara
von Geldern, Gloria
Ploughman, Michelle
Research interrupted: The impact of the COVID-19 pandemic on multiple sclerosis research in the field of rehabilitation and quality of life
title Research interrupted: The impact of the COVID-19 pandemic on multiple sclerosis research in the field of rehabilitation and quality of life
title_full Research interrupted: The impact of the COVID-19 pandemic on multiple sclerosis research in the field of rehabilitation and quality of life
title_fullStr Research interrupted: The impact of the COVID-19 pandemic on multiple sclerosis research in the field of rehabilitation and quality of life
title_full_unstemmed Research interrupted: The impact of the COVID-19 pandemic on multiple sclerosis research in the field of rehabilitation and quality of life
title_short Research interrupted: The impact of the COVID-19 pandemic on multiple sclerosis research in the field of rehabilitation and quality of life
title_sort research interrupted: the impact of the covid-19 pandemic on multiple sclerosis research in the field of rehabilitation and quality of life
topic Brief Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8404642/
https://www.ncbi.nlm.nih.gov/pubmed/34471543
http://dx.doi.org/10.1177/20552173211038030
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