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The ideal mHealth-application for rheumatoid arthritis: qualitative findings from stakeholder focus groups

BACKGROUND: Shifts in treatment strategies for rheumatoid arthritis (RA) have made ambulatory care more labour-intensive. These developments have prompted innovative care models, including mobile health (mHealth) applications. This study aimed to explore the perceptions of mHealth-inexperienced stak...

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Autores principales: Doumen, Michaël, Westhovens, René, Pazmino, Sofia, Bertrand, Delphine, Stouten, Veerle, Neys, Claudia, Creten, Nelly, Van Laeken, Els, Verschueren, Patrick, De Cock, Diederik
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8406841/
https://www.ncbi.nlm.nih.gov/pubmed/34461875
http://dx.doi.org/10.1186/s12891-021-04624-8
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author Doumen, Michaël
Westhovens, René
Pazmino, Sofia
Bertrand, Delphine
Stouten, Veerle
Neys, Claudia
Creten, Nelly
Van Laeken, Els
Verschueren, Patrick
De Cock, Diederik
author_facet Doumen, Michaël
Westhovens, René
Pazmino, Sofia
Bertrand, Delphine
Stouten, Veerle
Neys, Claudia
Creten, Nelly
Van Laeken, Els
Verschueren, Patrick
De Cock, Diederik
author_sort Doumen, Michaël
collection PubMed
description BACKGROUND: Shifts in treatment strategies for rheumatoid arthritis (RA) have made ambulatory care more labour-intensive. These developments have prompted innovative care models, including mobile health (mHealth) applications. This study aimed to explore the perceptions of mHealth-inexperienced stakeholders concerning these applications in RA care. METHODS: We performed a qualitative study by focus group interviews of stakeholders including RA patients, nurses specialised in RA care and rheumatologists. The qualitative analysis guide of Leuven (QUAGOL), which is based on grounded theory principles, was used to thematically analyse the data. In addition, the Persuasive Systems Design (PSD) model was used to structure recommended app-features. RESULTS: In total, 2 focus groups with nurses (total n = 16), 2 with patients (n = 17) and 2 with rheumatologists (n = 25) took place. Six overarching themes emerged from the analysis. Efficiency of care and enabling patient empowerment were the two themes considered as expected benefits of mHealth-use in practice by the stakeholders. In contrast, 4 themes emerged as possible barriers of mHealth-use: the burden of chronic app-use, motivational aspects, target group aspects, and legal and organisational requirements. Additionally, recommendations for an ideal mHealth-app could be structured into 4 domains (Primary Task Support, Dialogue Support, Social Support and System Credibility) according to the PSD-framework. Most recommended features were related to improving ease of use (Task Support) and System Credibility. CONCLUSIONS: Although mHealth-apps were expected to improve care efficiency and stimulate patient empowerment, stakeholders were concerned that mHealth-app use could reinforce negative illness behaviour. For mHealth-apps to be successful in practice, challenges according to stakeholders were avoiding long-term poor compliance, finding the target audience and tailoring a legal and organisational framework. Finally, the ideal mHealth-application should above all be trustworthy and easy to use. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12891-021-04624-8.
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spelling pubmed-84068412021-08-31 The ideal mHealth-application for rheumatoid arthritis: qualitative findings from stakeholder focus groups Doumen, Michaël Westhovens, René Pazmino, Sofia Bertrand, Delphine Stouten, Veerle Neys, Claudia Creten, Nelly Van Laeken, Els Verschueren, Patrick De Cock, Diederik BMC Musculoskelet Disord Research Article BACKGROUND: Shifts in treatment strategies for rheumatoid arthritis (RA) have made ambulatory care more labour-intensive. These developments have prompted innovative care models, including mobile health (mHealth) applications. This study aimed to explore the perceptions of mHealth-inexperienced stakeholders concerning these applications in RA care. METHODS: We performed a qualitative study by focus group interviews of stakeholders including RA patients, nurses specialised in RA care and rheumatologists. The qualitative analysis guide of Leuven (QUAGOL), which is based on grounded theory principles, was used to thematically analyse the data. In addition, the Persuasive Systems Design (PSD) model was used to structure recommended app-features. RESULTS: In total, 2 focus groups with nurses (total n = 16), 2 with patients (n = 17) and 2 with rheumatologists (n = 25) took place. Six overarching themes emerged from the analysis. Efficiency of care and enabling patient empowerment were the two themes considered as expected benefits of mHealth-use in practice by the stakeholders. In contrast, 4 themes emerged as possible barriers of mHealth-use: the burden of chronic app-use, motivational aspects, target group aspects, and legal and organisational requirements. Additionally, recommendations for an ideal mHealth-app could be structured into 4 domains (Primary Task Support, Dialogue Support, Social Support and System Credibility) according to the PSD-framework. Most recommended features were related to improving ease of use (Task Support) and System Credibility. CONCLUSIONS: Although mHealth-apps were expected to improve care efficiency and stimulate patient empowerment, stakeholders were concerned that mHealth-app use could reinforce negative illness behaviour. For mHealth-apps to be successful in practice, challenges according to stakeholders were avoiding long-term poor compliance, finding the target audience and tailoring a legal and organisational framework. Finally, the ideal mHealth-application should above all be trustworthy and easy to use. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12891-021-04624-8. BioMed Central 2021-08-30 /pmc/articles/PMC8406841/ /pubmed/34461875 http://dx.doi.org/10.1186/s12891-021-04624-8 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Article
Doumen, Michaël
Westhovens, René
Pazmino, Sofia
Bertrand, Delphine
Stouten, Veerle
Neys, Claudia
Creten, Nelly
Van Laeken, Els
Verschueren, Patrick
De Cock, Diederik
The ideal mHealth-application for rheumatoid arthritis: qualitative findings from stakeholder focus groups
title The ideal mHealth-application for rheumatoid arthritis: qualitative findings from stakeholder focus groups
title_full The ideal mHealth-application for rheumatoid arthritis: qualitative findings from stakeholder focus groups
title_fullStr The ideal mHealth-application for rheumatoid arthritis: qualitative findings from stakeholder focus groups
title_full_unstemmed The ideal mHealth-application for rheumatoid arthritis: qualitative findings from stakeholder focus groups
title_short The ideal mHealth-application for rheumatoid arthritis: qualitative findings from stakeholder focus groups
title_sort ideal mhealth-application for rheumatoid arthritis: qualitative findings from stakeholder focus groups
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8406841/
https://www.ncbi.nlm.nih.gov/pubmed/34461875
http://dx.doi.org/10.1186/s12891-021-04624-8
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