The impact of disease severity on the psychological well-being of youth affected by an inborn error of metabolism and their families: A one-year longitudinal study

Background: Inborn errors of metabolism (IEMs) refer to rare heterogeneous genetic disorders with various clinical manifestations that can cause serious physical and psychological sequelae. Results of previous studies on the impact of an IEM on health-related quality of life (HR-QoL) were incongruen...

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Detalles Bibliográficos
Autores principales: Dimitrova, Nevena, Glaus, Jennifer, Urben, Sébastien, Wüthrich, Valentine, Morisod Harari, Mathilde, Ballhausen, Diana
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2021
Materias:
Research Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8414531/
https://www.ncbi.nlm.nih.gov/pubmed/34504770
http://dx.doi.org/10.1016/j.ymgmr.2021.100795

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