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A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis

Objective: This survey article presents a literature review of relevant publications aiming to explore whether the EU's General Data Protection Regulation (GDPR) has held true during a time of crisis and the implications that arose during the COVID-19 outbreak. Method and Results: Based on the...

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Autores principales: Christofidou, Maria, Lea, Nathan, Coorevits, Pascal
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Georg Thieme Verlag KG 2021
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8416196/
https://www.ncbi.nlm.nih.gov/pubmed/34479394
http://dx.doi.org/10.1055/s-0041-1726512
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author Christofidou, Maria
Lea, Nathan
Coorevits, Pascal
author_facet Christofidou, Maria
Lea, Nathan
Coorevits, Pascal
author_sort Christofidou, Maria
collection PubMed
description Objective: This survey article presents a literature review of relevant publications aiming to explore whether the EU's General Data Protection Regulation (GDPR) has held true during a time of crisis and the implications that arose during the COVID-19 outbreak. Method and Results: Based on the approach taken and the screening of the relevant articles, the results focus on three themes: a critique on GDPR; the ethics surrounding the use of digital health technologies, namely in the form of mobile applications; and the possibility of cross border transfers of said data outside of Europe. Within this context, the article reviews the arising themes, considers the use of data through mobile health applications, and discusses whether data protection may require a revision when balancing societal and personal interests. Conclusions: In summary, although it is clear that the GDPR has been applied through a mixed and complex experience with data handling during the pandemic, the COVID-19 pandemic has indeed shown that it was a test the GDPR was designed and prepared to undertake. The article suggests that further review and research is needed to first ensure that an understanding of the state of the art in data protection during the pandemic is maintained and second to subsequently explore and carefully create a specific framework for the ethical considerations involved. The paper echoes the literature reviewed and calls for the creation of a unified and harmonised network or database to enable the secure data sharing across borders.
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spelling pubmed-84161962021-09-07 A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis Christofidou, Maria Lea, Nathan Coorevits, Pascal Yearb Med Inform Objective: This survey article presents a literature review of relevant publications aiming to explore whether the EU's General Data Protection Regulation (GDPR) has held true during a time of crisis and the implications that arose during the COVID-19 outbreak. Method and Results: Based on the approach taken and the screening of the relevant articles, the results focus on three themes: a critique on GDPR; the ethics surrounding the use of digital health technologies, namely in the form of mobile applications; and the possibility of cross border transfers of said data outside of Europe. Within this context, the article reviews the arising themes, considers the use of data through mobile health applications, and discusses whether data protection may require a revision when balancing societal and personal interests. Conclusions: In summary, although it is clear that the GDPR has been applied through a mixed and complex experience with data handling during the pandemic, the COVID-19 pandemic has indeed shown that it was a test the GDPR was designed and prepared to undertake. The article suggests that further review and research is needed to first ensure that an understanding of the state of the art in data protection during the pandemic is maintained and second to subsequently explore and carefully create a specific framework for the ethical considerations involved. The paper echoes the literature reviewed and calls for the creation of a unified and harmonised network or database to enable the secure data sharing across borders. Georg Thieme Verlag KG 2021-08 2021-09-03 /pmc/articles/PMC8416196/ /pubmed/34479394 http://dx.doi.org/10.1055/s-0041-1726512 Text en IMIA and Thieme. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. ( https://creativecommons.org/licenses/by-nc-nd/4.0/ ) https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License, which permits unrestricted reproduction and distribution, for non-commercial purposes only; and use and reproduction, but not distribution, of adapted material for non-commercial purposes only, provided the original work is properly cited.
spellingShingle Christofidou, Maria
Lea, Nathan
Coorevits, Pascal
A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis
title A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis
title_full A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis
title_fullStr A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis
title_full_unstemmed A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis
title_short A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis
title_sort literature review on the gdpr, covid-19 and the ethical considerations of data protection during a time of crisis
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8416196/
https://www.ncbi.nlm.nih.gov/pubmed/34479394
http://dx.doi.org/10.1055/s-0041-1726512
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