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Pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study
BACKGROUND: Qualitative research can reflect the actual thoughts and experience of research subjects and can be used to explore the experiences of women presenting with twin-to-twin transfusion syndrome (TTTS) to facilitate the provision of targeted psychological support. METHODS: A semi-structured...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8417964/ https://www.ncbi.nlm.nih.gov/pubmed/34479507 http://dx.doi.org/10.1186/s12884-021-04057-0 |
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author | Ren, Lijie Song, Cancan Xia, Chunling Wang, Nan Yang, Yan Yin, Shaowei |
author_facet | Ren, Lijie Song, Cancan Xia, Chunling Wang, Nan Yang, Yan Yin, Shaowei |
author_sort | Ren, Lijie |
collection | PubMed |
description | BACKGROUND: Qualitative research can reflect the actual thoughts and experience of research subjects and can be used to explore the experiences of women presenting with twin-to-twin transfusion syndrome (TTTS) to facilitate the provision of targeted psychological support. METHODS: A semi-structured interview method was used to assess the pregnancy and parenting experiences of women with TTTS. Colaizzi method was used for data analysis. RESULTS: Eighteen women participated in the study. We found that women with TTTS during pregnancy experienced persistent worry about their children’s health from the disease diagnosis to the subsequent parenting processes, even in case of minor changes in their children’s health. The lack of an efficient referral process and health information increased their uncertainty about their children’s health. CONCLUSION: In addition to the children’s health, other difficulties encountered during pregnancy and parenting may aggravate the pressure. Clinicians in the first-visit hospital and foetal medicine centre should improve the referral process and establish a follow-up system to provide women with health information and psychological support. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12884-021-04057-0. |
format | Online Article Text |
id | pubmed-8417964 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-84179642021-09-09 Pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study Ren, Lijie Song, Cancan Xia, Chunling Wang, Nan Yang, Yan Yin, Shaowei BMC Pregnancy Childbirth Research Article BACKGROUND: Qualitative research can reflect the actual thoughts and experience of research subjects and can be used to explore the experiences of women presenting with twin-to-twin transfusion syndrome (TTTS) to facilitate the provision of targeted psychological support. METHODS: A semi-structured interview method was used to assess the pregnancy and parenting experiences of women with TTTS. Colaizzi method was used for data analysis. RESULTS: Eighteen women participated in the study. We found that women with TTTS during pregnancy experienced persistent worry about their children’s health from the disease diagnosis to the subsequent parenting processes, even in case of minor changes in their children’s health. The lack of an efficient referral process and health information increased their uncertainty about their children’s health. CONCLUSION: In addition to the children’s health, other difficulties encountered during pregnancy and parenting may aggravate the pressure. Clinicians in the first-visit hospital and foetal medicine centre should improve the referral process and establish a follow-up system to provide women with health information and psychological support. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12884-021-04057-0. BioMed Central 2021-09-03 /pmc/articles/PMC8417964/ /pubmed/34479507 http://dx.doi.org/10.1186/s12884-021-04057-0 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Article Ren, Lijie Song, Cancan Xia, Chunling Wang, Nan Yang, Yan Yin, Shaowei Pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study |
title | Pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study |
title_full | Pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study |
title_fullStr | Pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study |
title_full_unstemmed | Pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study |
title_short | Pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study |
title_sort | pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8417964/ https://www.ncbi.nlm.nih.gov/pubmed/34479507 http://dx.doi.org/10.1186/s12884-021-04057-0 |
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