The de novo FAIRification process of a registry for vascular anomalies

BACKGROUND: Patient data registries that are FAIR—Findable, Accessible, Interoperable, and Reusable for humans and computers—facilitate research across multiple resources. This is particularly relevant to rare diseases, where data often are scarce and scattered. Specific research questions can be as...

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Detalles Bibliográficos
Autores principales: Groenen, Karlijn H. J., Jacobsen, Annika, Kersloot, Martijn G., dos Santos Vieira, Bruna, van Enckevort, Esther, Kaliyaperumal, Rajaram, Arts, Derk L., ‘t Hoen, Peter A. C., Cornet, Ronald, Roos, Marco, Kool, Leo Schultze
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8418729/
https://www.ncbi.nlm.nih.gov/pubmed/34481493
http://dx.doi.org/10.1186/s13023-021-02004-y

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