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Design of a FAIR digital data health infrastructure in Africa for COVID‐19 reporting and research

The limited volume of COVID‐19 data from Africa raises concerns for global genome research, which requires a diversity of genotypes for accurate disease prediction, including on the provenance of the new SARS‐CoV‐2 mutations. The Virus Outbreak Data Network (VODAN)‐Africa studied the possibility of...

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Autores principales: van Reisen, Mirjam, Oladipo, Francisca, Stokmans, Mia, Mpezamihgo, Mouhamed, Folorunso, Sakinat, Schultes, Erik, Basajja, Mariam, Aktau, Aliya, Amare, Samson Yohannes, Taye, Getu Tadele, Purnama Jati, Putu Hadi, Chindoza, Kudakwashe, Wirtz, Morgane, Ghardallou, Meriem, van Stam, Gertjan, Ayele, Wondimu, Nalugala, Reginald, Abdullahi, Ibrahim, Osigwe, Obinna, Graybeal, John, Medhanyie, Araya Abrha, Kawu, Abdullahi Abubakar, Liu, Fenghong, Wolstencroft, Katy, Flikkenschild, Erik, Lin, Yi, Stocker, Joëlle, Musen, Mark A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8420285/
https://www.ncbi.nlm.nih.gov/pubmed/34514430
http://dx.doi.org/10.1002/ggn2.10050
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author van Reisen, Mirjam
Oladipo, Francisca
Stokmans, Mia
Mpezamihgo, Mouhamed
Folorunso, Sakinat
Schultes, Erik
Basajja, Mariam
Aktau, Aliya
Amare, Samson Yohannes
Taye, Getu Tadele
Purnama Jati, Putu Hadi
Chindoza, Kudakwashe
Wirtz, Morgane
Ghardallou, Meriem
van Stam, Gertjan
Ayele, Wondimu
Nalugala, Reginald
Abdullahi, Ibrahim
Osigwe, Obinna
Graybeal, John
Medhanyie, Araya Abrha
Kawu, Abdullahi Abubakar
Liu, Fenghong
Wolstencroft, Katy
Flikkenschild, Erik
Lin, Yi
Stocker, Joëlle
Musen, Mark A.
author_facet van Reisen, Mirjam
Oladipo, Francisca
Stokmans, Mia
Mpezamihgo, Mouhamed
Folorunso, Sakinat
Schultes, Erik
Basajja, Mariam
Aktau, Aliya
Amare, Samson Yohannes
Taye, Getu Tadele
Purnama Jati, Putu Hadi
Chindoza, Kudakwashe
Wirtz, Morgane
Ghardallou, Meriem
van Stam, Gertjan
Ayele, Wondimu
Nalugala, Reginald
Abdullahi, Ibrahim
Osigwe, Obinna
Graybeal, John
Medhanyie, Araya Abrha
Kawu, Abdullahi Abubakar
Liu, Fenghong
Wolstencroft, Katy
Flikkenschild, Erik
Lin, Yi
Stocker, Joëlle
Musen, Mark A.
author_sort van Reisen, Mirjam
collection PubMed
description The limited volume of COVID‐19 data from Africa raises concerns for global genome research, which requires a diversity of genotypes for accurate disease prediction, including on the provenance of the new SARS‐CoV‐2 mutations. The Virus Outbreak Data Network (VODAN)‐Africa studied the possibility of increasing the production of clinical data, finding concerns about data ownership, and the limited use of health data for quality treatment at point of care. To address this, VODAN Africa developed an architecture to record clinical health data and research data collected on the incidence of COVID‐19, producing these as human‐ and machine‐readable data objects in a distributed architecture of locally governed, linked, human‐ and machine‐readable data. This architecture supports analytics at the point of care and—through data visiting, across facilities—for generic analytics. An algorithm was run across FAIR Data Points to visit the distributed data and produce aggregate findings. The FAIR data architecture is deployed in Uganda, Ethiopia, Liberia, Nigeria, Kenya, Somalia, Tanzania, Zimbabwe, and Tunisia.
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spelling pubmed-84202852021-09-07 Design of a FAIR digital data health infrastructure in Africa for COVID‐19 reporting and research van Reisen, Mirjam Oladipo, Francisca Stokmans, Mia Mpezamihgo, Mouhamed Folorunso, Sakinat Schultes, Erik Basajja, Mariam Aktau, Aliya Amare, Samson Yohannes Taye, Getu Tadele Purnama Jati, Putu Hadi Chindoza, Kudakwashe Wirtz, Morgane Ghardallou, Meriem van Stam, Gertjan Ayele, Wondimu Nalugala, Reginald Abdullahi, Ibrahim Osigwe, Obinna Graybeal, John Medhanyie, Araya Abrha Kawu, Abdullahi Abubakar Liu, Fenghong Wolstencroft, Katy Flikkenschild, Erik Lin, Yi Stocker, Joëlle Musen, Mark A. Adv Genet (Hoboken) Articles The limited volume of COVID‐19 data from Africa raises concerns for global genome research, which requires a diversity of genotypes for accurate disease prediction, including on the provenance of the new SARS‐CoV‐2 mutations. The Virus Outbreak Data Network (VODAN)‐Africa studied the possibility of increasing the production of clinical data, finding concerns about data ownership, and the limited use of health data for quality treatment at point of care. To address this, VODAN Africa developed an architecture to record clinical health data and research data collected on the incidence of COVID‐19, producing these as human‐ and machine‐readable data objects in a distributed architecture of locally governed, linked, human‐ and machine‐readable data. This architecture supports analytics at the point of care and—through data visiting, across facilities—for generic analytics. An algorithm was run across FAIR Data Points to visit the distributed data and produce aggregate findings. The FAIR data architecture is deployed in Uganda, Ethiopia, Liberia, Nigeria, Kenya, Somalia, Tanzania, Zimbabwe, and Tunisia. John Wiley & Sons, Inc. 2021-06-11 /pmc/articles/PMC8420285/ /pubmed/34514430 http://dx.doi.org/10.1002/ggn2.10050 Text en © 2021 The Authors. Advanced Genetics published by Wiley Periodicals LLC. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Articles
van Reisen, Mirjam
Oladipo, Francisca
Stokmans, Mia
Mpezamihgo, Mouhamed
Folorunso, Sakinat
Schultes, Erik
Basajja, Mariam
Aktau, Aliya
Amare, Samson Yohannes
Taye, Getu Tadele
Purnama Jati, Putu Hadi
Chindoza, Kudakwashe
Wirtz, Morgane
Ghardallou, Meriem
van Stam, Gertjan
Ayele, Wondimu
Nalugala, Reginald
Abdullahi, Ibrahim
Osigwe, Obinna
Graybeal, John
Medhanyie, Araya Abrha
Kawu, Abdullahi Abubakar
Liu, Fenghong
Wolstencroft, Katy
Flikkenschild, Erik
Lin, Yi
Stocker, Joëlle
Musen, Mark A.
Design of a FAIR digital data health infrastructure in Africa for COVID‐19 reporting and research
title Design of a FAIR digital data health infrastructure in Africa for COVID‐19 reporting and research
title_full Design of a FAIR digital data health infrastructure in Africa for COVID‐19 reporting and research
title_fullStr Design of a FAIR digital data health infrastructure in Africa for COVID‐19 reporting and research
title_full_unstemmed Design of a FAIR digital data health infrastructure in Africa for COVID‐19 reporting and research
title_short Design of a FAIR digital data health infrastructure in Africa for COVID‐19 reporting and research
title_sort design of a fair digital data health infrastructure in africa for covid‐19 reporting and research
topic Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8420285/
https://www.ncbi.nlm.nih.gov/pubmed/34514430
http://dx.doi.org/10.1002/ggn2.10050
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