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Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians

BACKGROUND: The COVID-19 pandemic has seen a rapid increase in the use of telehealth to deliver services to autistic individuals and their families. Research into the provision of autism assessments via telehealth is limited and few studies have explored clinician perspectives of conducting diagnost...

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Autores principales: Gibbs, Vicki, Cai, Ru Ying, Aldridge, Fiona, Wong, Michelle
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier Ltd. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8421202/
https://www.ncbi.nlm.nih.gov/pubmed/34512797
http://dx.doi.org/10.1016/j.rasd.2021.101859
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author Gibbs, Vicki
Cai, Ru Ying
Aldridge, Fiona
Wong, Michelle
author_facet Gibbs, Vicki
Cai, Ru Ying
Aldridge, Fiona
Wong, Michelle
author_sort Gibbs, Vicki
collection PubMed
description BACKGROUND: The COVID-19 pandemic has seen a rapid increase in the use of telehealth to deliver services to autistic individuals and their families. Research into the provision of autism assessments via telehealth is limited and few studies have explored clinician perspectives of conducting diagnostic assessments for autism in this way. The objective of this study was to examine the acceptability of a new telehealth model from the perspective of key stakeholder groups in an Australian community-based sample i.e. clients undergoing assessment, parent/carers and expert clinicians. METHODS: Sixteen adult clients (M(age) = 39.00, SD(age) = 14.39) and fifty-six parent/carers of children and adults (M(age) = 44.09, SD(age) = 9.87) undergoing autism assessments completed an online survey about their experiences of assessments via telehealth. Of these, six clients and twelve parent/carers agreed to participate in follow up interviews. Seven clinicians were also interviewed. RESULTS: In this study, the majority of adults and parent/carers reported that they, or the person they cared for, felt comfortable interacting with the clinician, would be willing to undergo future assessments via telehealth and were not concerned that important information had been missed during the assessment. Although the clinicians were slightly less satisfied with tele-assessment process compared to face-to-face and relied on external sources of information more than they would during a face-to-face assessment, their overall confidence in their diagnostic decision making remained high. CONCLUSION: Autism assessment via telehealth may be an acceptable alternative in some circumstances. However, a telehealth service should consider screening clients for suitability and adequately preparing clients for tele-assessments.
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spelling pubmed-84212022021-09-07 Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians Gibbs, Vicki Cai, Ru Ying Aldridge, Fiona Wong, Michelle Res Autism Spectr Disord Article BACKGROUND: The COVID-19 pandemic has seen a rapid increase in the use of telehealth to deliver services to autistic individuals and their families. Research into the provision of autism assessments via telehealth is limited and few studies have explored clinician perspectives of conducting diagnostic assessments for autism in this way. The objective of this study was to examine the acceptability of a new telehealth model from the perspective of key stakeholder groups in an Australian community-based sample i.e. clients undergoing assessment, parent/carers and expert clinicians. METHODS: Sixteen adult clients (M(age) = 39.00, SD(age) = 14.39) and fifty-six parent/carers of children and adults (M(age) = 44.09, SD(age) = 9.87) undergoing autism assessments completed an online survey about their experiences of assessments via telehealth. Of these, six clients and twelve parent/carers agreed to participate in follow up interviews. Seven clinicians were also interviewed. RESULTS: In this study, the majority of adults and parent/carers reported that they, or the person they cared for, felt comfortable interacting with the clinician, would be willing to undergo future assessments via telehealth and were not concerned that important information had been missed during the assessment. Although the clinicians were slightly less satisfied with tele-assessment process compared to face-to-face and relied on external sources of information more than they would during a face-to-face assessment, their overall confidence in their diagnostic decision making remained high. CONCLUSION: Autism assessment via telehealth may be an acceptable alternative in some circumstances. However, a telehealth service should consider screening clients for suitability and adequately preparing clients for tele-assessments. Elsevier Ltd. 2021-10 2021-09-06 /pmc/articles/PMC8421202/ /pubmed/34512797 http://dx.doi.org/10.1016/j.rasd.2021.101859 Text en © 2021 Elsevier Ltd. All rights reserved. Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.
spellingShingle Article
Gibbs, Vicki
Cai, Ru Ying
Aldridge, Fiona
Wong, Michelle
Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians
title Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians
title_full Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians
title_fullStr Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians
title_full_unstemmed Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians
title_short Autism assessment via telehealth during the Covid 19 pandemic: Experiences and perspectives of autistic adults, parents/carers and clinicians
title_sort autism assessment via telehealth during the covid 19 pandemic: experiences and perspectives of autistic adults, parents/carers and clinicians
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8421202/
https://www.ncbi.nlm.nih.gov/pubmed/34512797
http://dx.doi.org/10.1016/j.rasd.2021.101859
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