Cargando…
Leveraging a qualitative data repository to integrate patient and caregiver perspectives into clinical research
Understanding patient and caregiver experiences is a critical component of the conception, design, and implementation of clinical research studies. The “Database of Individual Patient Experiences” (DIPEx) is an innovative, evidence-based approach for eliciting rich information about health experienc...
Autores principales: | Christensen, Vivian, Parker, Kellee, Cottrell, Erika |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Cambridge University Press
2021
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8427548/ https://www.ncbi.nlm.nih.gov/pubmed/34527294 http://dx.doi.org/10.1017/cts.2021.822 |
Ejemplares similares
-
Practices of research data curation in institutional repositories: A qualitative view from repository staff
por: Lee, Dong Joon, et al.
Publicado: (2017) -
Lessons learned from developing a statewide research data repository to combat the opioid epidemic in Alabama
por: Hudnall, Matthew, et al.
Publicado: (2022) -
The security data lake: leveraging big data technologies to build a common data repository for security
por: Marty, Raffael
Publicado: (2015) -
The Integrated Data Repository Toolkit (IDRT): accelerating translational research infrastructures
por: Bauer, Christian, et al.
Publicado: (2015) -
The Gene Expression Barcode: leveraging public data repositories to begin cataloging the human and murine transcriptomes
por: McCall, Matthew N., et al.
Publicado: (2011)