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Reflections on the Experience of Community Health Nurses in Palliative Care: A Qualitative Approach
There is a major demographic shift with increase in non-communicable diseases even in low- and middle-income countries. Many self-limiting illnesses are burdensome to people when they have limited access to health care system and poor family support. The aim of the study explores experiences of comm...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Scientific Scholar
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8428882/ https://www.ncbi.nlm.nih.gov/pubmed/34511804 http://dx.doi.org/10.25259/IJPC_65_21 |
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author | Siva, R. Sadan, V. Alexander, G. Immanuel, S. Joy, Priyadharishini |
author_facet | Siva, R. Sadan, V. Alexander, G. Immanuel, S. Joy, Priyadharishini |
author_sort | Siva, R. |
collection | PubMed |
description | There is a major demographic shift with increase in non-communicable diseases even in low- and middle-income countries. Many self-limiting illnesses are burdensome to people when they have limited access to health care system and poor family support. The aim of the study explores experiences of community health nurses in palliative care delivery in a primary health care setting. The study was conducted in Community Health Nursing Department, College of Nursing, CMC, Vellore. A qualitative research using a grounded theory approach was done which included in-depth interviews and focus group discussions from community health nursing faculty. This study used a deductive and inductive approach that stressed the process rather than the meaning of the studied phenomenon. The in-depth interviews lasted for 45 min–1 ½ h for each participant; focus group discussions were held in two sessions lasting for 2 ½ h. The group interviews were transcribed to verbatim. All transcripts were read multiple times to ensure correctness of the transcription by the authors to get an overall impression of the material before the initial coding. Authenticity, credibility, critical appraisal and integrity were demonstrated throughout the study. This study enlightens the experiences of the health care providers on palliative care delivery at the primary care setting and explores barriers, challenges and facilitators for delivery of good palliative home care. Totally, 15 subthemes were grouped under five major themes; community support, family support, acceptance of services, barriers and gaps in care. The in-depth interviews provided an insight into the experiences of the participants on successful collaborative services, caregivers fatigue and the barriers in providing services in the home care setting. Focus group discussion showed that a holistic approach to patient care in primary care setting is possible by community health nurses and a collaborative care from the secondary and tertiary care settings will bring down the non-compliance to the therapeutic regimen. |
format | Online Article Text |
id | pubmed-8428882 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Scientific Scholar |
record_format | MEDLINE/PubMed |
spelling | pubmed-84288822021-09-10 Reflections on the Experience of Community Health Nurses in Palliative Care: A Qualitative Approach Siva, R. Sadan, V. Alexander, G. Immanuel, S. Joy, Priyadharishini Indian J Palliat Care Review Article There is a major demographic shift with increase in non-communicable diseases even in low- and middle-income countries. Many self-limiting illnesses are burdensome to people when they have limited access to health care system and poor family support. The aim of the study explores experiences of community health nurses in palliative care delivery in a primary health care setting. The study was conducted in Community Health Nursing Department, College of Nursing, CMC, Vellore. A qualitative research using a grounded theory approach was done which included in-depth interviews and focus group discussions from community health nursing faculty. This study used a deductive and inductive approach that stressed the process rather than the meaning of the studied phenomenon. The in-depth interviews lasted for 45 min–1 ½ h for each participant; focus group discussions were held in two sessions lasting for 2 ½ h. The group interviews were transcribed to verbatim. All transcripts were read multiple times to ensure correctness of the transcription by the authors to get an overall impression of the material before the initial coding. Authenticity, credibility, critical appraisal and integrity were demonstrated throughout the study. This study enlightens the experiences of the health care providers on palliative care delivery at the primary care setting and explores barriers, challenges and facilitators for delivery of good palliative home care. Totally, 15 subthemes were grouped under five major themes; community support, family support, acceptance of services, barriers and gaps in care. The in-depth interviews provided an insight into the experiences of the participants on successful collaborative services, caregivers fatigue and the barriers in providing services in the home care setting. Focus group discussion showed that a holistic approach to patient care in primary care setting is possible by community health nurses and a collaborative care from the secondary and tertiary care settings will bring down the non-compliance to the therapeutic regimen. Scientific Scholar 2021 2021-08-12 /pmc/articles/PMC8428882/ /pubmed/34511804 http://dx.doi.org/10.25259/IJPC_65_21 Text en © 2021 Published by Scientific Scholar on behalf of Indian Jounal of Palliative Care https://creativecommons.org/licenses/by-nc-sa/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial-Share Alike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as the author is credited and the new creations are licensed under the identical terms. |
spellingShingle | Review Article Siva, R. Sadan, V. Alexander, G. Immanuel, S. Joy, Priyadharishini Reflections on the Experience of Community Health Nurses in Palliative Care: A Qualitative Approach |
title | Reflections on the Experience of Community Health Nurses in Palliative Care: A Qualitative Approach |
title_full | Reflections on the Experience of Community Health Nurses in Palliative Care: A Qualitative Approach |
title_fullStr | Reflections on the Experience of Community Health Nurses in Palliative Care: A Qualitative Approach |
title_full_unstemmed | Reflections on the Experience of Community Health Nurses in Palliative Care: A Qualitative Approach |
title_short | Reflections on the Experience of Community Health Nurses in Palliative Care: A Qualitative Approach |
title_sort | reflections on the experience of community health nurses in palliative care: a qualitative approach |
topic | Review Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8428882/ https://www.ncbi.nlm.nih.gov/pubmed/34511804 http://dx.doi.org/10.25259/IJPC_65_21 |
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