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Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach

Individuals with advanced liver disease (AdvLD), such as decompensated cirrhosis (DC) and hepatocellular carcinoma (HCC), have significant palliative needs. However, little research is available to guide health care providers on how to improve key domains related to palliative care (PC). We sought t...

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Autores principales: Patel, Arpan A., Woodrell, Christopher, Ufere, Nneka N., Hansen, Lissi, Tandon, Puneeta, Verma, Manisha, Lai, Jennifer, Pinotti, Rachel, Rakoski, Mina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8435283/
https://www.ncbi.nlm.nih.gov/pubmed/34510839
http://dx.doi.org/10.1002/hep4.1743
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author Patel, Arpan A.
Woodrell, Christopher
Ufere, Nneka N.
Hansen, Lissi
Tandon, Puneeta
Verma, Manisha
Lai, Jennifer
Pinotti, Rachel
Rakoski, Mina
author_facet Patel, Arpan A.
Woodrell, Christopher
Ufere, Nneka N.
Hansen, Lissi
Tandon, Puneeta
Verma, Manisha
Lai, Jennifer
Pinotti, Rachel
Rakoski, Mina
author_sort Patel, Arpan A.
collection PubMed
description Individuals with advanced liver disease (AdvLD), such as decompensated cirrhosis (DC) and hepatocellular carcinoma (HCC), have significant palliative needs. However, little research is available to guide health care providers on how to improve key domains related to palliative care (PC). We sought to identify priority areas for future research in PC by performing a comprehensive literature review and conducting iterative expert panel discussions. We conducted a literature review using search terms related to AdvLD and key PC domains. Individual reviews of these domains were performed, followed by iterative discussions by a panel consisting of experts from multiple disciplines, including hepatology, specialty PC, and nursing. Based on these discussions, priority areas for research were identified. We identified critical gaps in the available research related to PC and AdvLD. We developed and shared five key priority questions incorporating domains related to PC. Conclusion: Future research endeavors focused on improving PC in AdvLD should consider addressing the five key priorities areas identified from literature reviews and expert panel discussions.
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spelling pubmed-84352832021-09-15 Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach Patel, Arpan A. Woodrell, Christopher Ufere, Nneka N. Hansen, Lissi Tandon, Puneeta Verma, Manisha Lai, Jennifer Pinotti, Rachel Rakoski, Mina Hepatol Commun Review Individuals with advanced liver disease (AdvLD), such as decompensated cirrhosis (DC) and hepatocellular carcinoma (HCC), have significant palliative needs. However, little research is available to guide health care providers on how to improve key domains related to palliative care (PC). We sought to identify priority areas for future research in PC by performing a comprehensive literature review and conducting iterative expert panel discussions. We conducted a literature review using search terms related to AdvLD and key PC domains. Individual reviews of these domains were performed, followed by iterative discussions by a panel consisting of experts from multiple disciplines, including hepatology, specialty PC, and nursing. Based on these discussions, priority areas for research were identified. We identified critical gaps in the available research related to PC and AdvLD. We developed and shared five key priority questions incorporating domains related to PC. Conclusion: Future research endeavors focused on improving PC in AdvLD should consider addressing the five key priorities areas identified from literature reviews and expert panel discussions. John Wiley and Sons Inc. 2021-06-16 /pmc/articles/PMC8435283/ /pubmed/34510839 http://dx.doi.org/10.1002/hep4.1743 Text en © 2021 The Authors. Hepatology Communications published by Wiley Periodicals LLC on behalf of the American Association for the Study of Liver Diseases. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Review
Patel, Arpan A.
Woodrell, Christopher
Ufere, Nneka N.
Hansen, Lissi
Tandon, Puneeta
Verma, Manisha
Lai, Jennifer
Pinotti, Rachel
Rakoski, Mina
Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach
title Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach
title_full Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach
title_fullStr Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach
title_full_unstemmed Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach
title_short Developing Priorities for Palliative Care Research in Advanced Liver Disease: A Multidisciplinary Approach
title_sort developing priorities for palliative care research in advanced liver disease: a multidisciplinary approach
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8435283/
https://www.ncbi.nlm.nih.gov/pubmed/34510839
http://dx.doi.org/10.1002/hep4.1743
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