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Patient and family engagement in the development of core outcome sets for two rare chronic diseases in children

BACKGROUND: Core outcome sets (COS) are lists of consensus-determined outcomes to be measured and reported in all clinical research studies within a disease area. While including patients and families in COS development to improve their relevance and applicability to patient values is key, there is...

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Detalles Bibliográficos
Autores principales:	Vanderhout, Shelley M., Smith, Maureen, Pallone, Nicole, Tingley, Kylie, Pugliese, Michael, Chakraborty, Pranesh, Stockler, Sylvia, Offringa, Martin, Butcher, Nancy, Nicholls, Stuart G., Potter, Beth K.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Commentary
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8439069/ https://www.ncbi.nlm.nih.gov/pubmed/34521478 http://dx.doi.org/10.1186/s40900-021-00304-y

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