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“Kicking and Screaming” or “Gracefully Conceding”: Creative Nonfiction Stories of Aging With Multiple Sclerosis
Aging with multiple sclerosis (MS) is a complex phenomenon. Some individuals report physical and cognitive dysfunctions regarding these combined experiences, whereas others report perceived improvements in quality of life. Beyond this, little is known regarding how people make sense of, and come to...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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SAGE Publications
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8446897/ https://www.ncbi.nlm.nih.gov/pubmed/33926326 http://dx.doi.org/10.1177/10497323211009864 |
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author | Richardson, Emma V. Motl, Robert W. |
author_facet | Richardson, Emma V. Motl, Robert W. |
author_sort | Richardson, Emma V. |
collection | PubMed |
description | Aging with multiple sclerosis (MS) is a complex phenomenon. Some individuals report physical and cognitive dysfunctions regarding these combined experiences, whereas others report perceived improvements in quality of life. Beyond this, little is known regarding how people make sense of, and come to embody, negative or positive experiences of MS. Thus, our objectives were to (a) explore how people made sense of aging with MS and (b) present this in an artful, engaging, transformative way. To achieve this, we conducted 40 semi-structured interviews with older adults who had MS, analyzed data using pluralistic narrative analyses, and presented results through two creative nonfictions. We detail our process of creating the nonfictions before presenting the different stories of aging with MS, namely “Kicking and Screaming” and “Gracefully Conceding.” We then offer recommendations and implications for using these stories as knowledge translation devices, and further critique the limitations of these stories in practice. |
format | Online Article Text |
id | pubmed-8446897 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-84468972021-09-18 “Kicking and Screaming” or “Gracefully Conceding”: Creative Nonfiction Stories of Aging With Multiple Sclerosis Richardson, Emma V. Motl, Robert W. Qual Health Res Research Articles Aging with multiple sclerosis (MS) is a complex phenomenon. Some individuals report physical and cognitive dysfunctions regarding these combined experiences, whereas others report perceived improvements in quality of life. Beyond this, little is known regarding how people make sense of, and come to embody, negative or positive experiences of MS. Thus, our objectives were to (a) explore how people made sense of aging with MS and (b) present this in an artful, engaging, transformative way. To achieve this, we conducted 40 semi-structured interviews with older adults who had MS, analyzed data using pluralistic narrative analyses, and presented results through two creative nonfictions. We detail our process of creating the nonfictions before presenting the different stories of aging with MS, namely “Kicking and Screaming” and “Gracefully Conceding.” We then offer recommendations and implications for using these stories as knowledge translation devices, and further critique the limitations of these stories in practice. SAGE Publications 2021-04-30 2021-08 /pmc/articles/PMC8446897/ /pubmed/33926326 http://dx.doi.org/10.1177/10497323211009864 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Research Articles Richardson, Emma V. Motl, Robert W. “Kicking and Screaming” or “Gracefully Conceding”: Creative Nonfiction Stories of Aging With Multiple Sclerosis |
title | “Kicking and Screaming” or “Gracefully Conceding”: Creative
Nonfiction Stories of Aging With Multiple Sclerosis |
title_full | “Kicking and Screaming” or “Gracefully Conceding”: Creative
Nonfiction Stories of Aging With Multiple Sclerosis |
title_fullStr | “Kicking and Screaming” or “Gracefully Conceding”: Creative
Nonfiction Stories of Aging With Multiple Sclerosis |
title_full_unstemmed | “Kicking and Screaming” or “Gracefully Conceding”: Creative
Nonfiction Stories of Aging With Multiple Sclerosis |
title_short | “Kicking and Screaming” or “Gracefully Conceding”: Creative
Nonfiction Stories of Aging With Multiple Sclerosis |
title_sort | “kicking and screaming” or “gracefully conceding”: creative
nonfiction stories of aging with multiple sclerosis |
topic | Research Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8446897/ https://www.ncbi.nlm.nih.gov/pubmed/33926326 http://dx.doi.org/10.1177/10497323211009864 |
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