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‘You're only there on the phone’? A qualitative exploration of community, affect and agential capacity in HIV self‐testing using a smartphone app

Mobile health (mHealth) technologies for HIV care are developed to provide diagnostic support, health education, risk assessment and self‐monitoring. They aim to either improve or replace part of the therapeutic relationship. Part of the therapeutic relationship is affective, with the emergence of f...

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Autores principales: Janssen, Ricky, Engel, Nora, Pant Pai, Nitika, Esmail, Aliasgar, Dheda, Keertan, Thomas, Réjean, Krumeich, Anja
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451867/
https://www.ncbi.nlm.nih.gov/pubmed/33634889
http://dx.doi.org/10.1111/1467-9566.13242
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author Janssen, Ricky
Engel, Nora
Pant Pai, Nitika
Esmail, Aliasgar
Dheda, Keertan
Thomas, Réjean
Krumeich, Anja
author_facet Janssen, Ricky
Engel, Nora
Pant Pai, Nitika
Esmail, Aliasgar
Dheda, Keertan
Thomas, Réjean
Krumeich, Anja
author_sort Janssen, Ricky
collection PubMed
description Mobile health (mHealth) technologies for HIV care are developed to provide diagnostic support, health education, risk assessment and self‐monitoring. They aim to either improve or replace part of the therapeutic relationship. Part of the therapeutic relationship is affective, with the emergence of feelings and emotion, yet little research on mHealth for HIV care focuses on affect and HIV testing practices. Furthermore, most of the literature exploring affect and care relations with the introduction of mHealth is limited to the European and Australian context. This article explores affective dimensions of HIV self‐testing using a smartphone app strategy in Cape Town, South Africa and Montréal, Canada. This study is based on observation notes, 41 interviews and 1 focus group discussion with study participants and trained HIV healthcare providers from two quantitative studies evaluating the app‐based self‐test strategy. Our paper reveals how fear, apathy, judgement, frustration and comfort arise in testing encounters using the app and in previous testing experiences, as well as how this relates to care providers and test materials. Attending to affective aspects of this app‐based self‐testing practice makes visible certain affordances and limitations of the app within the therapeutic encounter and illustrates how mHealth can contribute to HIV care.
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spelling pubmed-84518672021-09-27 ‘You're only there on the phone’? A qualitative exploration of community, affect and agential capacity in HIV self‐testing using a smartphone app Janssen, Ricky Engel, Nora Pant Pai, Nitika Esmail, Aliasgar Dheda, Keertan Thomas, Réjean Krumeich, Anja Sociol Health Illn Original Articles Mobile health (mHealth) technologies for HIV care are developed to provide diagnostic support, health education, risk assessment and self‐monitoring. They aim to either improve or replace part of the therapeutic relationship. Part of the therapeutic relationship is affective, with the emergence of feelings and emotion, yet little research on mHealth for HIV care focuses on affect and HIV testing practices. Furthermore, most of the literature exploring affect and care relations with the introduction of mHealth is limited to the European and Australian context. This article explores affective dimensions of HIV self‐testing using a smartphone app strategy in Cape Town, South Africa and Montréal, Canada. This study is based on observation notes, 41 interviews and 1 focus group discussion with study participants and trained HIV healthcare providers from two quantitative studies evaluating the app‐based self‐test strategy. Our paper reveals how fear, apathy, judgement, frustration and comfort arise in testing encounters using the app and in previous testing experiences, as well as how this relates to care providers and test materials. Attending to affective aspects of this app‐based self‐testing practice makes visible certain affordances and limitations of the app within the therapeutic encounter and illustrates how mHealth can contribute to HIV care. John Wiley and Sons Inc. 2021-02-26 2021-03 /pmc/articles/PMC8451867/ /pubmed/33634889 http://dx.doi.org/10.1111/1467-9566.13242 Text en © 2021 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL). https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Original Articles
Janssen, Ricky
Engel, Nora
Pant Pai, Nitika
Esmail, Aliasgar
Dheda, Keertan
Thomas, Réjean
Krumeich, Anja
‘You're only there on the phone’? A qualitative exploration of community, affect and agential capacity in HIV self‐testing using a smartphone app
title ‘You're only there on the phone’? A qualitative exploration of community, affect and agential capacity in HIV self‐testing using a smartphone app
title_full ‘You're only there on the phone’? A qualitative exploration of community, affect and agential capacity in HIV self‐testing using a smartphone app
title_fullStr ‘You're only there on the phone’? A qualitative exploration of community, affect and agential capacity in HIV self‐testing using a smartphone app
title_full_unstemmed ‘You're only there on the phone’? A qualitative exploration of community, affect and agential capacity in HIV self‐testing using a smartphone app
title_short ‘You're only there on the phone’? A qualitative exploration of community, affect and agential capacity in HIV self‐testing using a smartphone app
title_sort ‘you're only there on the phone’? a qualitative exploration of community, affect and agential capacity in hiv self‐testing using a smartphone app
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451867/
https://www.ncbi.nlm.nih.gov/pubmed/33634889
http://dx.doi.org/10.1111/1467-9566.13242
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