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Partners of female patients with rheumatoid arthritis and reproductive decision-making: a constructivist grounded theory study

OBJECTIVE: Partners of patients with RA often take on supportive roles given the debilitating nature of RA. Our objective was to explore the perspectives, attitudes and experiences of partners of female patients with RA regarding reproductive experiences and decision-making. METHODS: We conducted a...

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Autores principales: Garg, Ria, Rebić, Nevena, Amiri, Neda, Hazlewood, Glen, Baldwin, Corisande, Ensworth, Stephanie, Proulx, Laurie, De Vera, Mary A
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8452997/
https://www.ncbi.nlm.nih.gov/pubmed/34557621
http://dx.doi.org/10.1093/rap/rkab040
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author Garg, Ria
Rebić, Nevena
Amiri, Neda
Hazlewood, Glen
Baldwin, Corisande
Ensworth, Stephanie
Proulx, Laurie
De Vera, Mary A
author_facet Garg, Ria
Rebić, Nevena
Amiri, Neda
Hazlewood, Glen
Baldwin, Corisande
Ensworth, Stephanie
Proulx, Laurie
De Vera, Mary A
author_sort Garg, Ria
collection PubMed
description OBJECTIVE: Partners of patients with RA often take on supportive roles given the debilitating nature of RA. Our objective was to explore the perspectives, attitudes and experiences of partners of female patients with RA regarding reproductive experiences and decision-making. METHODS: We conducted a qualitative study involving semi-structured interviews with partners of female patients with RA. We defined a partner as an individual within a romantic relationship. Constructivist grounded theory was applied to interview transcripts to identify and conceptualize themes. RESULTS: We interviewed 10 partners of female patients with RA (10 males; mean age, 35 [23–56] years), of whom 40% had at least one child with a female patient with RA and did not desire additional children. We identified four themes representing stages of reproductive decision-making: (1) developing an understanding of RA, (2) contemplating future family decision-making, (3) initiating reproductive decision-making with partner, and (4) reflecting on past reproductive experiences. Participants contemplated their attitudes and perspectives regarding pregnancy and used available information to support their partner’s medication decisions. When reflecting on their reproductive experiences, participants shared the impacts of past reproductive decisions on their romantic relationship and their mental health and wellbeing. CONCLUSION: Our study highlights the need for comprehensive support for both female patients with RA and their partners at all stages of reproductive decision-making. Health-care providers can identify opportunities for intervention that involves female patients with RA and their partners to minimize stress and its negative impacts on the family.
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spelling pubmed-84529972021-09-22 Partners of female patients with rheumatoid arthritis and reproductive decision-making: a constructivist grounded theory study Garg, Ria Rebić, Nevena Amiri, Neda Hazlewood, Glen Baldwin, Corisande Ensworth, Stephanie Proulx, Laurie De Vera, Mary A Rheumatol Adv Pract Original Article OBJECTIVE: Partners of patients with RA often take on supportive roles given the debilitating nature of RA. Our objective was to explore the perspectives, attitudes and experiences of partners of female patients with RA regarding reproductive experiences and decision-making. METHODS: We conducted a qualitative study involving semi-structured interviews with partners of female patients with RA. We defined a partner as an individual within a romantic relationship. Constructivist grounded theory was applied to interview transcripts to identify and conceptualize themes. RESULTS: We interviewed 10 partners of female patients with RA (10 males; mean age, 35 [23–56] years), of whom 40% had at least one child with a female patient with RA and did not desire additional children. We identified four themes representing stages of reproductive decision-making: (1) developing an understanding of RA, (2) contemplating future family decision-making, (3) initiating reproductive decision-making with partner, and (4) reflecting on past reproductive experiences. Participants contemplated their attitudes and perspectives regarding pregnancy and used available information to support their partner’s medication decisions. When reflecting on their reproductive experiences, participants shared the impacts of past reproductive decisions on their romantic relationship and their mental health and wellbeing. CONCLUSION: Our study highlights the need for comprehensive support for both female patients with RA and their partners at all stages of reproductive decision-making. Health-care providers can identify opportunities for intervention that involves female patients with RA and their partners to minimize stress and its negative impacts on the family. Oxford University Press 2021-06-21 /pmc/articles/PMC8452997/ /pubmed/34557621 http://dx.doi.org/10.1093/rap/rkab040 Text en © The Author(s) 2021. Published by Oxford University Press on behalf of the British Society for Rheumatology. https://creativecommons.org/licenses/by-nc/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Original Article
Garg, Ria
Rebić, Nevena
Amiri, Neda
Hazlewood, Glen
Baldwin, Corisande
Ensworth, Stephanie
Proulx, Laurie
De Vera, Mary A
Partners of female patients with rheumatoid arthritis and reproductive decision-making: a constructivist grounded theory study
title Partners of female patients with rheumatoid arthritis and reproductive decision-making: a constructivist grounded theory study
title_full Partners of female patients with rheumatoid arthritis and reproductive decision-making: a constructivist grounded theory study
title_fullStr Partners of female patients with rheumatoid arthritis and reproductive decision-making: a constructivist grounded theory study
title_full_unstemmed Partners of female patients with rheumatoid arthritis and reproductive decision-making: a constructivist grounded theory study
title_short Partners of female patients with rheumatoid arthritis and reproductive decision-making: a constructivist grounded theory study
title_sort partners of female patients with rheumatoid arthritis and reproductive decision-making: a constructivist grounded theory study
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8452997/
https://www.ncbi.nlm.nih.gov/pubmed/34557621
http://dx.doi.org/10.1093/rap/rkab040
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