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Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process
In healthcare settings, patient participation is increasingly adopted as a possible remedy to ill people suffering from ‘epistemic injustices’ – that is to their unfair harming as knowers. In exploring and interpreting patient participation discourses within the 2013–2018 Dutch Myalgic Encephalomyel...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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John Wiley and Sons Inc.
2021
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8453904/ https://www.ncbi.nlm.nih.gov/pubmed/34137042 http://dx.doi.org/10.1111/1467-9566.13301 |
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author | de Boer, Marjolein Lotte |
author_facet | de Boer, Marjolein Lotte |
author_sort | de Boer, Marjolein Lotte |
collection | PubMed |
description | In healthcare settings, patient participation is increasingly adopted as a possible remedy to ill people suffering from ‘epistemic injustices’ – that is to their unfair harming as knowers. In exploring and interpreting patient participation discourses within the 2013–2018 Dutch Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) Health Council advisory process, this paper assesses the epistemological emancipatory value of this participatory practice. It reveals that in the analysed case, patient representatives predominantly offer biomedical knowledge about ME/CFS. They frame this condition as primarily somatic, and accordingly, perceive appropriate diagnostic criteria, research avenues and treatment options as quantifiable, objectifiable and explicitly non‐psychogenic. This paper argues that such a dominant biomedical patient participatory practice is ambiguous in terms of its ability to correct epistemic injustices towards ill people. Biomedicalized patient participation may enhance people's credibility and their ability to make sense of their illness, but it may also undermine their valid position within participatory practices as well as lead to (sustaining) biased and reductive ideas about who ill people are and what kind of knowledge they hold. The final section of this paper offers a brief reflection on how to navigate such biomedicalized participatory practices in order to attain more emancipatory ones. |
format | Online Article Text |
id | pubmed-8453904 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-84539042021-09-27 Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process de Boer, Marjolein Lotte Sociol Health Illn Original Articles In healthcare settings, patient participation is increasingly adopted as a possible remedy to ill people suffering from ‘epistemic injustices’ – that is to their unfair harming as knowers. In exploring and interpreting patient participation discourses within the 2013–2018 Dutch Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) Health Council advisory process, this paper assesses the epistemological emancipatory value of this participatory practice. It reveals that in the analysed case, patient representatives predominantly offer biomedical knowledge about ME/CFS. They frame this condition as primarily somatic, and accordingly, perceive appropriate diagnostic criteria, research avenues and treatment options as quantifiable, objectifiable and explicitly non‐psychogenic. This paper argues that such a dominant biomedical patient participatory practice is ambiguous in terms of its ability to correct epistemic injustices towards ill people. Biomedicalized patient participation may enhance people's credibility and their ability to make sense of their illness, but it may also undermine their valid position within participatory practices as well as lead to (sustaining) biased and reductive ideas about who ill people are and what kind of knowledge they hold. The final section of this paper offers a brief reflection on how to navigate such biomedicalized participatory practices in order to attain more emancipatory ones. John Wiley and Sons Inc. 2021-06-17 2021-07 /pmc/articles/PMC8453904/ /pubmed/34137042 http://dx.doi.org/10.1111/1467-9566.13301 Text en © 2021 The Author. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL) https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made. |
spellingShingle | Original Articles de Boer, Marjolein Lotte Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process |
title | Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process |
title_full | Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process |
title_fullStr | Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process |
title_full_unstemmed | Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process |
title_short | Epistemic in/justice in patient participation. A discourse analysis of the Dutch ME/CFS Health Council advisory process |
title_sort | epistemic in/justice in patient participation. a discourse analysis of the dutch me/cfs health council advisory process |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8453904/ https://www.ncbi.nlm.nih.gov/pubmed/34137042 http://dx.doi.org/10.1111/1467-9566.13301 |
work_keys_str_mv | AT deboermarjoleinlotte epistemicinjusticeinpatientparticipationadiscourseanalysisofthedutchmecfshealthcounciladvisoryprocess |