Family caregivers of rare disease: A survey on health‐related quality of life in family caregivers for Gaucher disease patients in China

BACKGROUND: Rare diseases affect the health‐related quality of life (HRQoL) of patients and their family caregivers (FCs). However, limited evidence is available on the HRQoL of FCs of patients with Gaucher disease (GD). This study aimed to assess HRQoL and related factors among FCs of patients with...

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Detalles Bibliográficos
Autores principales: Xu, Jiao, Bao, Han, Qi, Xinye, Wang, Jiahui, Yin, Hang, Shang, Chunyang, Tan, Rachel Leeyin, Wu, Qunhong, Huang, Weidong
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8457695/
https://www.ncbi.nlm.nih.gov/pubmed/34387413
http://dx.doi.org/10.1002/mgg3.1760

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