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A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care
The current base of knowledge around Parkinson’s disease has been assembled in partnership with a cohort of participants that does not resemble the diversity of people with the disease. This poor representation in research results in an incomplete picture of the disease and disparities in care. The...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
IOS Press
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8463923/ https://www.ncbi.nlm.nih.gov/pubmed/33843698 http://dx.doi.org/10.3233/JPD-212593 |
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author | Siddiqi, Bernadette Koemeter-Cox, Andrew |
author_facet | Siddiqi, Bernadette Koemeter-Cox, Andrew |
author_sort | Siddiqi, Bernadette |
collection | PubMed |
description | The current base of knowledge around Parkinson’s disease has been assembled in partnership with a cohort of participants that does not resemble the diversity of people with the disease. This poor representation in research results in an incomplete picture of the disease and disparities in care. The Michael J. Fox Foundation has defined four major areas of action: 1) identifying barriers and solutions to research participation; 2) funding inclusive research with greater participant diversity; 3) building a clinician/researcher workforce committed to health equity; and 4) supporting a more holistic understanding of PD. While factors driving disparities, including broader societal challenges, are complex, it is imperative that the PD research, care, and patient communities move in a decisive and coordinated fashion to identify and implement strategies that advance treatments for everyone with PD and eliminate care inequities. |
format | Online Article Text |
id | pubmed-8463923 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | IOS Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-84639232021-10-08 A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care Siddiqi, Bernadette Koemeter-Cox, Andrew J Parkinsons Dis Michael J. Fox Foundation – Position Paper The current base of knowledge around Parkinson’s disease has been assembled in partnership with a cohort of participants that does not resemble the diversity of people with the disease. This poor representation in research results in an incomplete picture of the disease and disparities in care. The Michael J. Fox Foundation has defined four major areas of action: 1) identifying barriers and solutions to research participation; 2) funding inclusive research with greater participant diversity; 3) building a clinician/researcher workforce committed to health equity; and 4) supporting a more holistic understanding of PD. While factors driving disparities, including broader societal challenges, are complex, it is imperative that the PD research, care, and patient communities move in a decisive and coordinated fashion to identify and implement strategies that advance treatments for everyone with PD and eliminate care inequities. IOS Press 2021-08-02 /pmc/articles/PMC8463923/ /pubmed/33843698 http://dx.doi.org/10.3233/JPD-212593 Text en © 2021 – The authors. Published by IOS Press https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Non-Commercial (CC BY-NC 4.0) License (https://creativecommons.org/licenses/by-nc/4.0/) , which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Michael J. Fox Foundation – Position Paper Siddiqi, Bernadette Koemeter-Cox, Andrew A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care |
title | A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care |
title_full | A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care |
title_fullStr | A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care |
title_full_unstemmed | A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care |
title_short | A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care |
title_sort | call to action: promoting diversity, equity, and inclusion in parkinson’s research and care |
topic | Michael J. Fox Foundation – Position Paper |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8463923/ https://www.ncbi.nlm.nih.gov/pubmed/33843698 http://dx.doi.org/10.3233/JPD-212593 |
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