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A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care

The current base of knowledge around Parkinson’s disease has been assembled in partnership with a cohort of participants that does not resemble the diversity of people with the disease. This poor representation in research results in an incomplete picture of the disease and disparities in care. The...

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Detalles Bibliográficos
Autores principales: Siddiqi, Bernadette, Koemeter-Cox, Andrew
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8463923/
https://www.ncbi.nlm.nih.gov/pubmed/33843698
http://dx.doi.org/10.3233/JPD-212593
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author Siddiqi, Bernadette
Koemeter-Cox, Andrew
author_facet Siddiqi, Bernadette
Koemeter-Cox, Andrew
author_sort Siddiqi, Bernadette
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description The current base of knowledge around Parkinson’s disease has been assembled in partnership with a cohort of participants that does not resemble the diversity of people with the disease. This poor representation in research results in an incomplete picture of the disease and disparities in care. The Michael J. Fox Foundation has defined four major areas of action: 1) identifying barriers and solutions to research participation; 2) funding inclusive research with greater participant diversity; 3) building a clinician/researcher workforce committed to health equity; and 4) supporting a more holistic understanding of PD. While factors driving disparities, including broader societal challenges, are complex, it is imperative that the PD research, care, and patient communities move in a decisive and coordinated fashion to identify and implement strategies that advance treatments for everyone with PD and eliminate care inequities.
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spelling pubmed-84639232021-10-08 A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care Siddiqi, Bernadette Koemeter-Cox, Andrew J Parkinsons Dis Michael J. Fox Foundation – Position Paper The current base of knowledge around Parkinson’s disease has been assembled in partnership with a cohort of participants that does not resemble the diversity of people with the disease. This poor representation in research results in an incomplete picture of the disease and disparities in care. The Michael J. Fox Foundation has defined four major areas of action: 1) identifying barriers and solutions to research participation; 2) funding inclusive research with greater participant diversity; 3) building a clinician/researcher workforce committed to health equity; and 4) supporting a more holistic understanding of PD. While factors driving disparities, including broader societal challenges, are complex, it is imperative that the PD research, care, and patient communities move in a decisive and coordinated fashion to identify and implement strategies that advance treatments for everyone with PD and eliminate care inequities. IOS Press 2021-08-02 /pmc/articles/PMC8463923/ /pubmed/33843698 http://dx.doi.org/10.3233/JPD-212593 Text en © 2021 – The authors. Published by IOS Press https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Non-Commercial (CC BY-NC 4.0) License (https://creativecommons.org/licenses/by-nc/4.0/) , which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Michael J. Fox Foundation – Position Paper
Siddiqi, Bernadette
Koemeter-Cox, Andrew
A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care
title A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care
title_full A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care
title_fullStr A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care
title_full_unstemmed A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care
title_short A Call to Action: Promoting Diversity, Equity, and Inclusion in Parkinson’s Research and Care
title_sort call to action: promoting diversity, equity, and inclusion in parkinson’s research and care
topic Michael J. Fox Foundation – Position Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8463923/
https://www.ncbi.nlm.nih.gov/pubmed/33843698
http://dx.doi.org/10.3233/JPD-212593
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