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Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation

In the absence of widely accepted education standards for parents of children after liver transplantation (LTx), the content and structure of parental training are influenced by health care practitioners’ (HCP) individual knowledge and assessment of the relevance of its contents. This study examines...

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Autores principales: Ohlendorf, Johanna, Stasch, Luisa, Baumann, Ulrich, Konietzny, Christiane, Pfister, Eva-Doreen, Ernst, Gundula, Lange, Karin, Sautmann, Kirsten, Goldschmidt, Imeke
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8469562/
https://www.ncbi.nlm.nih.gov/pubmed/34572259
http://dx.doi.org/10.3390/children8090827
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author Ohlendorf, Johanna
Stasch, Luisa
Baumann, Ulrich
Konietzny, Christiane
Pfister, Eva-Doreen
Ernst, Gundula
Lange, Karin
Sautmann, Kirsten
Goldschmidt, Imeke
author_facet Ohlendorf, Johanna
Stasch, Luisa
Baumann, Ulrich
Konietzny, Christiane
Pfister, Eva-Doreen
Ernst, Gundula
Lange, Karin
Sautmann, Kirsten
Goldschmidt, Imeke
author_sort Ohlendorf, Johanna
collection PubMed
description In the absence of widely accepted education standards for parents of children after liver transplantation (LTx), the content and structure of parental training are influenced by health care practitioners’ (HCP) individual knowledge and assessment of the relevance of its contents. This study examines the hypothesis that expectations towards training differ between HCPs and parents, and that the quality of parental training affects the job-satisfaction of HCPs. Attitudes towards disease-specific education were assessed by tailor-made questionnaires in HCPs (n = 20) and parents of children with chronic liver disease or after LTx (n = 113). These were supplemented by focused interviews in n = 7 HCPs and n = 16 parents. Parents were more satisfied with current counseling than HCP. Language barriers and low parental educational background were perceived as obstacles by 43% of HCPs. The quality of parental knowledge was felt to have a strong influence on HCPs job satisfaction. The expectations towards the content of disease-specific education largely overlap but are not synonymous. HCP and parents agreed with regards to the importance of medication knowledge. Parents rated the importance about the meaning of laboratory values and diagnostic procedures significantly higher (3.50 vs. 2.85, p < 0.001 and 3.42 vs. 2.80, p < 0.001) than HCPs. Parents and HCPs would prefer a structured framework with sufficient staff resources for disease-specific counseling.
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spelling pubmed-84695622021-09-27 Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation Ohlendorf, Johanna Stasch, Luisa Baumann, Ulrich Konietzny, Christiane Pfister, Eva-Doreen Ernst, Gundula Lange, Karin Sautmann, Kirsten Goldschmidt, Imeke Children (Basel) Article In the absence of widely accepted education standards for parents of children after liver transplantation (LTx), the content and structure of parental training are influenced by health care practitioners’ (HCP) individual knowledge and assessment of the relevance of its contents. This study examines the hypothesis that expectations towards training differ between HCPs and parents, and that the quality of parental training affects the job-satisfaction of HCPs. Attitudes towards disease-specific education were assessed by tailor-made questionnaires in HCPs (n = 20) and parents of children with chronic liver disease or after LTx (n = 113). These were supplemented by focused interviews in n = 7 HCPs and n = 16 parents. Parents were more satisfied with current counseling than HCP. Language barriers and low parental educational background were perceived as obstacles by 43% of HCPs. The quality of parental knowledge was felt to have a strong influence on HCPs job satisfaction. The expectations towards the content of disease-specific education largely overlap but are not synonymous. HCP and parents agreed with regards to the importance of medication knowledge. Parents rated the importance about the meaning of laboratory values and diagnostic procedures significantly higher (3.50 vs. 2.85, p < 0.001 and 3.42 vs. 2.80, p < 0.001) than HCPs. Parents and HCPs would prefer a structured framework with sufficient staff resources for disease-specific counseling. MDPI 2021-09-21 /pmc/articles/PMC8469562/ /pubmed/34572259 http://dx.doi.org/10.3390/children8090827 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Ohlendorf, Johanna
Stasch, Luisa
Baumann, Ulrich
Konietzny, Christiane
Pfister, Eva-Doreen
Ernst, Gundula
Lange, Karin
Sautmann, Kirsten
Goldschmidt, Imeke
Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation
title Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation
title_full Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation
title_fullStr Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation
title_full_unstemmed Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation
title_short Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation
title_sort two sides of a coin: parental disease-specific training as seen by health care practitioners and parents in pediatric liver transplantation
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8469562/
https://www.ncbi.nlm.nih.gov/pubmed/34572259
http://dx.doi.org/10.3390/children8090827
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