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Volunteers’ Support of Carers of Rural People Living with Dementia to Use a Custom-Built Application

There is great potential for human-centred technologies to enhance wellbeing for people living with dementia and their carers. The Virtual Dementia Friendly Rural Communities (Verily Connect) project aimed to increase access to information, support, and connection for carers of rural people living w...

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Autores principales: Wilding, Clare, Davis, Hilary, Rasekaba, Tshepo, Hamiduzzaman, Mohammad, Royals, Kayla, Greenhill, Jennene, O’Connell, Megan E., Perkins, David, Bauer, Michael, Morgan, Debra, Blackberry, Irene
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8472467/
https://www.ncbi.nlm.nih.gov/pubmed/34574832
http://dx.doi.org/10.3390/ijerph18189909
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author Wilding, Clare
Davis, Hilary
Rasekaba, Tshepo
Hamiduzzaman, Mohammad
Royals, Kayla
Greenhill, Jennene
O’Connell, Megan E.
Perkins, David
Bauer, Michael
Morgan, Debra
Blackberry, Irene
author_facet Wilding, Clare
Davis, Hilary
Rasekaba, Tshepo
Hamiduzzaman, Mohammad
Royals, Kayla
Greenhill, Jennene
O’Connell, Megan E.
Perkins, David
Bauer, Michael
Morgan, Debra
Blackberry, Irene
author_sort Wilding, Clare
collection PubMed
description There is great potential for human-centred technologies to enhance wellbeing for people living with dementia and their carers. The Virtual Dementia Friendly Rural Communities (Verily Connect) project aimed to increase access to information, support, and connection for carers of rural people living with dementia, via a co-designed, integrated website/mobile application (app) and Zoom videoconferencing. Volunteers were recruited and trained to assist the carers to use the Verily Connect app and videoconferencing. The overall research design was a stepped wedge open cohort randomized cluster trial involving 12 rural communities, spanning three states of Australia, with three types of participants: carers of people living with dementia, volunteers, and health/aged services staff. Data collected from volunteers (n = 39) included eight interviews and five focus groups with volunteers, and 75 process memos written by research team members. The data were analyzed using a descriptive evaluation framework and building themes through open coding, inductive reasoning, and code categorization. The volunteers reported that the Verily Connect app was easy to use and they felt they derived benefit from volunteering. The volunteers had less volunteering work than they desired due to low numbers of carer participants; they reported that older rural carers were partly reluctant to join the trial because they eschewed using online technologies, which was the reason for involving volunteers from each local community.
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spelling pubmed-84724672021-09-28 Volunteers’ Support of Carers of Rural People Living with Dementia to Use a Custom-Built Application Wilding, Clare Davis, Hilary Rasekaba, Tshepo Hamiduzzaman, Mohammad Royals, Kayla Greenhill, Jennene O’Connell, Megan E. Perkins, David Bauer, Michael Morgan, Debra Blackberry, Irene Int J Environ Res Public Health Article There is great potential for human-centred technologies to enhance wellbeing for people living with dementia and their carers. The Virtual Dementia Friendly Rural Communities (Verily Connect) project aimed to increase access to information, support, and connection for carers of rural people living with dementia, via a co-designed, integrated website/mobile application (app) and Zoom videoconferencing. Volunteers were recruited and trained to assist the carers to use the Verily Connect app and videoconferencing. The overall research design was a stepped wedge open cohort randomized cluster trial involving 12 rural communities, spanning three states of Australia, with three types of participants: carers of people living with dementia, volunteers, and health/aged services staff. Data collected from volunteers (n = 39) included eight interviews and five focus groups with volunteers, and 75 process memos written by research team members. The data were analyzed using a descriptive evaluation framework and building themes through open coding, inductive reasoning, and code categorization. The volunteers reported that the Verily Connect app was easy to use and they felt they derived benefit from volunteering. The volunteers had less volunteering work than they desired due to low numbers of carer participants; they reported that older rural carers were partly reluctant to join the trial because they eschewed using online technologies, which was the reason for involving volunteers from each local community. MDPI 2021-09-20 /pmc/articles/PMC8472467/ /pubmed/34574832 http://dx.doi.org/10.3390/ijerph18189909 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Wilding, Clare
Davis, Hilary
Rasekaba, Tshepo
Hamiduzzaman, Mohammad
Royals, Kayla
Greenhill, Jennene
O’Connell, Megan E.
Perkins, David
Bauer, Michael
Morgan, Debra
Blackberry, Irene
Volunteers’ Support of Carers of Rural People Living with Dementia to Use a Custom-Built Application
title Volunteers’ Support of Carers of Rural People Living with Dementia to Use a Custom-Built Application
title_full Volunteers’ Support of Carers of Rural People Living with Dementia to Use a Custom-Built Application
title_fullStr Volunteers’ Support of Carers of Rural People Living with Dementia to Use a Custom-Built Application
title_full_unstemmed Volunteers’ Support of Carers of Rural People Living with Dementia to Use a Custom-Built Application
title_short Volunteers’ Support of Carers of Rural People Living with Dementia to Use a Custom-Built Application
title_sort volunteers’ support of carers of rural people living with dementia to use a custom-built application
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8472467/
https://www.ncbi.nlm.nih.gov/pubmed/34574832
http://dx.doi.org/10.3390/ijerph18189909
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