Developing Personas to Inform The Creation of Novel Interventions to Improve Participation Among People With Stroke During COVID-19

RESEARCH OBJECTIVES: People living with disabilities have been found to experience reduced participation during the COVID-19 pandemic. In order to inform interventions to improve physical activity and social participation in stroke survivors, we created personas to inform the design and development of products targeting stroke patients during life-changing events such as pandemics after stroke DESIGN: Persona development methodology using qualitative interview data. The personas were developed by mapping participants to behavioural variables identified from coded transcripts. After identifying behaviour patterns, characteristics and goals were synthesized. SETTING: Virtual-data collection via Zoom; community. PARTICIPANTS: Community-dwelling individuals who have had a stroke (n = 26) were recruited. We included participants 19 years of age or older and if they were able to communicate in English. Participants were excluded if they had moderate or severe cognitive impairment or aphasia. INTERVENTIONS: N/A. MAIN OUTCOME MEASURES: N/A. RESULTS: Our analysis identified 6 distinct personas that reflect participant behaviours and goals in regard to participation during COVID-19. 1) “The Community Provider” likes to feel involved and wants to engage in daily life. 2) “The Homebody” enjoys alone time but lacks a daily routine. This persona aims to feel motivated to accomplish personal goals. 3) “The Independent” seeks to be an active and integrated part of the community without physical or situational restrictions. 4) “The Lifestyle Person” wants to live the good life and do whatever they want, whenever they want. 5) “The Contributor” wants to feel needed and wants to be responsible for helping in the community. 6) “The Health-Literate Participator” wants to be on top of things and stay healthy for their family and themselves. CONCLUSIONS: The personas highlight behaviours and goals in stroke patients towards physical activity and social participation during COVID-19. The personas will help guide the development of interventions to improve physical activity and social participation. The interventions will be developed based on the behaviours and goals of those living with stroke. AUTHOR(S) DISCLOSURES: N/A.