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iPSYcare: the development of a linked electronic medical records database to study and optimize psychiatric care in Antwerp

OBJECTIVE: The study of care trajectories of psychiatric patients across hospitals was previously not possible in Belgium as each hospital stores its data autonomously, and government-related registrations do not contain a unique identifier or are incomplete. A new longitudinal database called iPSYc...

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Autores principales: Rens, Eva, Michielsen, Joris, Dom, Geert, Remmen, Roy, Van den Broeck, Kris
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8474849/
https://www.ncbi.nlm.nih.gov/pubmed/34565465
http://dx.doi.org/10.1186/s13104-021-05791-6
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author Rens, Eva
Michielsen, Joris
Dom, Geert
Remmen, Roy
Van den Broeck, Kris
author_facet Rens, Eva
Michielsen, Joris
Dom, Geert
Remmen, Roy
Van den Broeck, Kris
author_sort Rens, Eva
collection PubMed
description OBJECTIVE: The study of care trajectories of psychiatric patients across hospitals was previously not possible in Belgium as each hospital stores its data autonomously, and government-related registrations do not contain a unique identifier or are incomplete. A new longitudinal database called iPSYcare (Improved Psychiatric Care and Research) was therefore constructed in 2021, and links the electronic medical records of patients in psychiatric units of eight hospitals in the Antwerp Province, Belgium. The database provides a wide range of information on patients, care trajectories and delivered care in the region. In a first phase, the database will only contain information about adult patients who were admitted to a hospital or treated by an outreach team and who gave explicit consent. In the future, the database may be expanded to other regions and additional data on outpatient care may be added. RESULTS: IPSYcare is a close collaboration between the University of Antwerp and hospitals in the province of Antwerp. This paper describes the development of the database, how privacy and ethical issues will be handled, and how the governance of the database will be organized.
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spelling pubmed-84748492021-09-28 iPSYcare: the development of a linked electronic medical records database to study and optimize psychiatric care in Antwerp Rens, Eva Michielsen, Joris Dom, Geert Remmen, Roy Van den Broeck, Kris BMC Res Notes Research Note OBJECTIVE: The study of care trajectories of psychiatric patients across hospitals was previously not possible in Belgium as each hospital stores its data autonomously, and government-related registrations do not contain a unique identifier or are incomplete. A new longitudinal database called iPSYcare (Improved Psychiatric Care and Research) was therefore constructed in 2021, and links the electronic medical records of patients in psychiatric units of eight hospitals in the Antwerp Province, Belgium. The database provides a wide range of information on patients, care trajectories and delivered care in the region. In a first phase, the database will only contain information about adult patients who were admitted to a hospital or treated by an outreach team and who gave explicit consent. In the future, the database may be expanded to other regions and additional data on outpatient care may be added. RESULTS: IPSYcare is a close collaboration between the University of Antwerp and hospitals in the province of Antwerp. This paper describes the development of the database, how privacy and ethical issues will be handled, and how the governance of the database will be organized. BioMed Central 2021-09-26 /pmc/articles/PMC8474849/ /pubmed/34565465 http://dx.doi.org/10.1186/s13104-021-05791-6 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Note
Rens, Eva
Michielsen, Joris
Dom, Geert
Remmen, Roy
Van den Broeck, Kris
iPSYcare: the development of a linked electronic medical records database to study and optimize psychiatric care in Antwerp
title iPSYcare: the development of a linked electronic medical records database to study and optimize psychiatric care in Antwerp
title_full iPSYcare: the development of a linked electronic medical records database to study and optimize psychiatric care in Antwerp
title_fullStr iPSYcare: the development of a linked electronic medical records database to study and optimize psychiatric care in Antwerp
title_full_unstemmed iPSYcare: the development of a linked electronic medical records database to study and optimize psychiatric care in Antwerp
title_short iPSYcare: the development of a linked electronic medical records database to study and optimize psychiatric care in Antwerp
title_sort ipsycare: the development of a linked electronic medical records database to study and optimize psychiatric care in antwerp
topic Research Note
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8474849/
https://www.ncbi.nlm.nih.gov/pubmed/34565465
http://dx.doi.org/10.1186/s13104-021-05791-6
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