Study Protocol for the Development of a European eHealth Platform to Improve Quality of Life in Individuals With Huntington's Disease and Their Partners (HD-eHelp Study): A User-Centered Design Approach

Background: Huntington's disease (HD) is an autosomal dominant neurodegenerative disease that affects the quality of life (QoL) of HD gene expansion carriers (HDGECs) and their partners. Although HD expertise centers have been emerging across Europe, there are still some important barriers to c...

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Detalles Bibliográficos
Autores principales: van Lonkhuizen, Pearl J. C., Vegt, Niko J. H., Meijer, Eline, van Duijn, Erik, de Bot, Susanne T., Klempíř, Jiří, Frank, Wiebke, Landwehrmeyer, G. Bernhard, Mühlbäck, Alzbeta, Hoblyn, Jennifer, Squitieri, Ferdinando, Foley, Peter, Chavannes, Niels H., Heemskerk, Anne-Wil
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Neurology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8476232/
https://www.ncbi.nlm.nih.gov/pubmed/34589047
http://dx.doi.org/10.3389/fneur.2021.719460

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