A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ

BACKGROUND: Patient-reported outcome measures (PROs) used to measure symptoms of patients with paroxysmal nocturnal hemoglobinuria (PNH) in trials do not measure PNH symptoms comprehensively and do not assess daily fluctuations in symptoms. Following a literature review and consultation with a PNH e...

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Detalles Bibliográficos
Autores principales: Daly, R. Paola, Jalbert, Jessica J., Keith, Shannon, Symonds, Tara, Shammo, Jamile
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8479131/
https://www.ncbi.nlm.nih.gov/pubmed/34581910
http://dx.doi.org/10.1186/s41687-021-00376-0

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