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Evaluation of the parents’ anxiety levels before and after the diagnosis of their child with a rare genetic disease: the necessity of psychological support

BACKGROUND: The diagnosis of the rare genetic diseases has great importance in treating multisystemic conditions, preventing potential complications, and estimating disease risk for family members. The duration of obtaining genetic test results is varies. The demand to learn the diagnosis of a possi...

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Detalles Bibliográficos
Autores principales:	Kolemen, Ayse B., Akyuz, Enes, Toprak, Ali, Deveci, Erdem, Yesil, Gozde
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2021
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8480067/ https://www.ncbi.nlm.nih.gov/pubmed/34583726 http://dx.doi.org/10.1186/s13023-021-02046-2

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