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Ethical issues in participatory arts methods for young people with adverse childhood experiences

CONTEXT: Participatory arts‐based methods such as photovoice, drama and music have increasingly been used to engage young people who are exposed to psychosocial risks. These methods have the potential to empower youth and provide them with an accessible and welcoming environment to express and manag...

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Autores principales: Pavarini, Gabriela, Smith, Lindsay M., Shaughnessy, Nicola, Mankee‐Williams, Anna, Thirumalai, Josita Kavitha, Russell, Natalie, Bhui, Kamaldeep
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8483199/
https://www.ncbi.nlm.nih.gov/pubmed/34318573
http://dx.doi.org/10.1111/hex.13314
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author Pavarini, Gabriela
Smith, Lindsay M.
Shaughnessy, Nicola
Mankee‐Williams, Anna
Thirumalai, Josita Kavitha
Russell, Natalie
Bhui, Kamaldeep
author_facet Pavarini, Gabriela
Smith, Lindsay M.
Shaughnessy, Nicola
Mankee‐Williams, Anna
Thirumalai, Josita Kavitha
Russell, Natalie
Bhui, Kamaldeep
author_sort Pavarini, Gabriela
collection PubMed
description CONTEXT: Participatory arts‐based methods such as photovoice, drama and music have increasingly been used to engage young people who are exposed to psychosocial risks. These methods have the potential to empower youth and provide them with an accessible and welcoming environment to express and manage difficult feelings and experiences. These effects are, however, dependent on the way these methods are implemented and how potential ethical concerns are handled. OBJECTIVE: Using the current literature on arts‐based health research as a foundation, this paper examines ethical issues emerging from participatory arts methods with young people with traumatic experiences. RESULTS: We present a typology covering relevant issues such as power, accessibility, communication, trust and ownership, across the domains of partnership working, project entry, participation and dissemination. Drawing on our extensive clinical and research experiences, existing research and novel in‐practice examples, we offer guidance for ethical dilemmas that might arise at different phases of research. CONCLUSION: Adequate anticipation and consideration of ethical issues, together with the involvement of young people, will help ensure that arts methods are implemented in research and practice with young people in a fair, meaningful and empowering way. PATIENT OR PUBLIC CONTRIBUTION: The issues reviewed are largely based on the authors' experience conducting participatory research. Each of the projects referenced has its own systems for PPI including, variously, consultations with advisory groups, coproduction, youth ambassadors and mentor schemes. One of the coauthors, Josita Kavitha Thirumalai, is a young person trained in peer support and has provided extensive input across all stages.
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spelling pubmed-84831992021-10-06 Ethical issues in participatory arts methods for young people with adverse childhood experiences Pavarini, Gabriela Smith, Lindsay M. Shaughnessy, Nicola Mankee‐Williams, Anna Thirumalai, Josita Kavitha Russell, Natalie Bhui, Kamaldeep Health Expect Review Articles CONTEXT: Participatory arts‐based methods such as photovoice, drama and music have increasingly been used to engage young people who are exposed to psychosocial risks. These methods have the potential to empower youth and provide them with an accessible and welcoming environment to express and manage difficult feelings and experiences. These effects are, however, dependent on the way these methods are implemented and how potential ethical concerns are handled. OBJECTIVE: Using the current literature on arts‐based health research as a foundation, this paper examines ethical issues emerging from participatory arts methods with young people with traumatic experiences. RESULTS: We present a typology covering relevant issues such as power, accessibility, communication, trust and ownership, across the domains of partnership working, project entry, participation and dissemination. Drawing on our extensive clinical and research experiences, existing research and novel in‐practice examples, we offer guidance for ethical dilemmas that might arise at different phases of research. CONCLUSION: Adequate anticipation and consideration of ethical issues, together with the involvement of young people, will help ensure that arts methods are implemented in research and practice with young people in a fair, meaningful and empowering way. PATIENT OR PUBLIC CONTRIBUTION: The issues reviewed are largely based on the authors' experience conducting participatory research. Each of the projects referenced has its own systems for PPI including, variously, consultations with advisory groups, coproduction, youth ambassadors and mentor schemes. One of the coauthors, Josita Kavitha Thirumalai, is a young person trained in peer support and has provided extensive input across all stages. John Wiley and Sons Inc. 2021-07-27 2021-10 /pmc/articles/PMC8483199/ /pubmed/34318573 http://dx.doi.org/10.1111/hex.13314 Text en © 2021 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Review Articles
Pavarini, Gabriela
Smith, Lindsay M.
Shaughnessy, Nicola
Mankee‐Williams, Anna
Thirumalai, Josita Kavitha
Russell, Natalie
Bhui, Kamaldeep
Ethical issues in participatory arts methods for young people with adverse childhood experiences
title Ethical issues in participatory arts methods for young people with adverse childhood experiences
title_full Ethical issues in participatory arts methods for young people with adverse childhood experiences
title_fullStr Ethical issues in participatory arts methods for young people with adverse childhood experiences
title_full_unstemmed Ethical issues in participatory arts methods for young people with adverse childhood experiences
title_short Ethical issues in participatory arts methods for young people with adverse childhood experiences
title_sort ethical issues in participatory arts methods for young people with adverse childhood experiences
topic Review Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8483199/
https://www.ncbi.nlm.nih.gov/pubmed/34318573
http://dx.doi.org/10.1111/hex.13314
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